Worried about leaving wife for a week

Hi All,

My wife was dxd earlier this year with RRMS. I have to go to the US for a week for work on Sunday and am having panic attacks at the thought of leaving her.

I know she is safe with her family but I am scared of her having a relapse while I am away or what would happen to her if anything happened to me.

Does anyone have any tips on dealng with seperation anxiety? I am angry with work for making me be away at a time she is healthy as well. I just want to quit and spend my time with her. I have a really high pressure job and work long hours. I feel I am missing out on our life together :frowning:

Sorry for the rant.

D

Oh dear, this is a sad story. can`t you speak openly with your employer about your concerns, when you are sent so far away?

If you have to go, then go knowing you have made the best possible arrangements for your wife`s care, should she become ill with a relapse.

Tell your wife you do not wish to leave her, but being the bread winner, you dont have any choice in the matter.

When you come back, maybe you could have a re-think re your work.

Enjoy the trip. The time will pass before you know it.

luv Pollx

Thanks,

Unfortunatly my role has evolved in a way that I have global responsability. I just thought I would be able to cope with it a bit better than I am.

I tried to raise my concernse in a round about way but never really explained them directly so I guess I can’t blame my employer.

I am just scared I won’t find the strength to get on the plane. I think long term the key is just to look for something with better hours nearer to home and spend as much time with my wife as possible.

Again thanks for your kind words.

D

Hi Anon,

Just to put a slightly different slant on things, you say your wife has only recently been diagnosed, and is well at the moment?

I think you might have hit the nail on the head when you admit it is your own anxiety that needs addressing.

MS in NOT a life-threatening condition, in the vast majority of cases, and certainly doesn’t sound as if it is for your wife at the moment.

It may not be great for your wife’s confidence or independence to foster the belief that she is too ill to be left for one week. She still very much has a life to lead - as do you.

I do know MS can affect people very differently, so perhaps I’m underestimating how severely your wife is affected. But if it’s any reassurance, I can tell you I have continued to live alone for over two years since being diagnosed, and absolutely nothing has come up I couldn’t handle, at all.

If somebody suggested I wasn’t safe to be left alone for one week, I’m not sure whether I’d laugh, or feel quite miffed about it.

Also, MS is NOT a terminal disease. You and your wife can expect to have about the same number of years together as any couple where neither has MS. So the feeling that you cannot spare even one week, because her time is so limited, is not an accurate reflection of reality.

I would suggest you go on the trip. For every person who is diagnosed, and their nearest and dearest, there’s a first time for things. A first time to go on holiday, first time on a night out, first time to be left alone - a first time for everything they wouldn’t have thought twice about before the diagnosis. But the only way to overcome the feeling that all these perfectly normal things are now somehow dangerous and off-limits is to go ahead and do them. Otherwise you’ll never get the confidence that you can do them, and be fine.

Playing devil’s advocate, suppose you were very unlucky, and she did have a relapse in that one week? Is there any help she would need that could positively, absolutely, ONLY be given by you? Or could it be given by anyone with commonsense and the number of her GP or local MS clinic? A relapse can be nasty, but is very rarely a life-threatening emergency, in the manner of a stroke, heart attack, or car crash. Many relapses don’t require hospital admission or treatment at all, and the advice is just to rest at home. There would be ample time for you to rearrange your flights and make your way home: there’s nothing that requires you to be there in an hour.

What does your wife herself think? Is she anxious about you going, or is she confident she’ll be absolutely fine?

I think if you do it the once, and it goes fine, you’ll be much less anxious about doing it again. I don’t think it’s a great idea to think about jacking in your job so soon after your wife’s diagnosis. That could be a bit of a knee-jerk reaction. See how it goes for a while first. You can’t yet tell how frequent or severe your wife’s relapses may be. If time shows they are neither frequent nor severe, you might find you’ve turned your back on a blossoming career unnecessarily.

Tina

Excellent advice given by Tina. Losing a well-paid professional job may well only add to your stress and worries in the long term which would be of no benefit to yourself or your wife.

You will have something interesting to talk about when you get back, plus these days you can keep in touch so easily. Plus of course it will take your mind off of the MS, which can become all consuming if you let it. You must both learn to get on with your lives as best you can, incorporating the MS, but not letting it rule you with a rod of iron.

Regards

Hi Tina,

Thanks for the reply. Of course I haven’t told my wife that I don’t want to go away because of her diagnosis. You are right it is my own selfishness that is making me want to stay with her.

As for work I wasn’t that happy in my job anyway and would like to find more of a work life balance but I will go on this trip be strong and sort work out after.

Thanks again

D

Hi Tina,

Thanks for the reply. Of course I haven’t told my wife that I don’t want to go away because of her diagnosis. You are right it is my own selfishness that is making me want to stay with her.

As for work I wasn’t that happy in my job anyway and would like to find more of a work life balance but I will go on this trip be strong and sort work out after.

Thanks again

D

Hi D,

I wasn’t implying you are selfish at all, but in time you will learn to find the right balance between understandable concern, and excessive anxiety, that starts limiting your choices in life.

MS is, for most people, a manageable condition, and not a medical emergency. I don’t want to give you even more to worry about, but statistically, your wife is probably more at risk from an ordinary domestic accident, that anyone could have, than from a critical escalation of her MS, during the short time you are away.

To give you an idea of how an insurance company views the risks, the insurance premium to cover me (the person with MS) against the event of a relapse on a one week trip to Turkey, three months post diagnosis, was not any dearer than if I hadn’t had MS at all! I compared the prices both with and without relapse cover, and they came out the same.

Of course, I wasn’t such a gambler as NOT to insure against a relapse (and why wouldn’t I, when it was no extra anyway?), but it gives you an idea that the insurance company can’t have thought they were taking on much of a risk. The chances of being hit by a relapse in that one particular week were really quite small.

And I’m happy to report I did go on the holiday, and I didn’t have a relapse.

But if I hadn’t taken that first step, I might still be wondering to this day whether it’s “safe” for me to go on holiday, or do other normal things.

And I know it’s slightly different if you are the partner, and not the diagnosed person. But you still need to gain confidence that ordinary things are safe. That your wife isn’t in mortal danger. Otherwise, I can foresee horizons getting rather narrow for both of you, and that’s a shame, if it’s anxiety causing it, and not the illness itself. You could have lots of good years still ahead of you: not everyone with MS becomes seriously disabled, and it could take decades, even for those that do. Please don’t start living as if your wife was already totally dependant, while she continues to be well. You could both miss out on lots of opportunities!

Of course, if you dislike the job anyway, and want to change, is a completely different issue, and something you’ll have to think about. But the way you describe things at the moment, there’s no overriding reason you need to cancel a short business trip.

Tina

Hi Tina,

I know you weren’t calling me selfish I just feel that I was being.

Everything you say makes a great deal of sense. I am just a natural worrier and would probably be getting worked up anyway. I guess I was looking for any coping techniques to help combat the anxiety?

My wife is good at the moment and I also hope that she has many years with little effect from ms it is just the diagnosis has put a differnt perspective on life. I guess it is the unpradictable course of the disease that just makes me want to spend more time with my wife.

Thanks Again

D

Hi Tina,

I know you weren’t calling me selfish I just feel that I was being.

Everything you say makes a great deal of sense. I am just a natural worrier and would probably be getting worked up anyway. I guess I was looking for any coping techniques to help combat the anxiety?

My wife is good at the moment and I also hope that she has many years with little effect from ms it is just the diagnosis has put a differnt perspective on life. I guess it is the unpradictable course of the disease that just makes me want to spend more time with my wife.

Thanks Again

D

Absolutely! Another friend who I have known since I was 13, was at school with up in Lancaster, then flat mates in London when we were 20. I got married and moved back North, he stayed in London. We now meet up a few times a year and if possible go skiing (badly) once a year. When I broke the news of my MS last November and the fact it has shot my stabilty so no skiing, he mentioned the escapade we had four years ago with ‘snow bikes’ (bike frame with skis on and blades on your feet), with the view if you do not fall off a bike, then sorted! If you do, you do not have as far to fall!