Thanks for your reply. Yeah I’m on baclofen, it has helped to a point, I noticed alot at first as I was struggling even in the house. However its still so bad outside when i do more than a few steps i get stiffer and stiffer. Even my toes curl under. Its getting painful to walk and exhausting. I really feel i need a chair outside as i cant do even around a shop anymore. I have a toddler i cant chase if she runs.
Its just hard waiting a dx. I think im beginning to worry its ppms. Really since Christmas ive only had 2 months where my main symptoms went, but i did have vertigo still with fatigue, and couldnt stand from kneeling without help etc.
I will ask about physio, thanks . maybe theyll let me once i have a dx. My consultant saw how bad i was walking and asked what I’d done! uuhh.
How do you manage outside the home with longer distances? Have you got rrms? Sorry to waffle but this forum is my new best friend! No one else understands.