Wierd sensations

Happy new year. I hope everyone is as well asy ou can be.

I’ve not posted for a while as I have been trying to get on with things following a dx of CIS in December 2013 as, even though I get many strange symptoms, they are manageable with Amitryptiline and the dizziness I was getting is mostly controlled now with Betahistine.

I’ve had a further MRI which showed no change so I was hopeful things would stay as they were but over Christmas I started getting strange cold sensations in my legs - it felt as if I had a freezing cold core running through them so although they felt warm to touch they felt cold from the inside out.

The first time it happened we had been out for a short walk and it was very cold and breezy so I just assumed it was down to my legs getting chilled, even though they didn’t feel it to the touch. It then happened a few more times then seemed to stop but at 5:00 this morning I woke up with the same sensation through my whole body, from the roof of my mouth to the end of my feet, and my legs were buzzing.

Now I’m up my mouth and legs feel cold from the inside although the feeling through te rest of my body now feels OK.

Has anyone else had this, could it be the start of a relapse?

Ay insights appreciated as getting an appointment with my GP is a real challenge - although she is great when I do get to see her.



hi susie

who knows if it is a relapse! i certainly don’t although i can now (6 years in) guess.

you should make an appointment to see your gp because this needs going onto your medical records.

i can’t stand being hot but now i hate being cold!

cold makes my legs hurt!

just walking past the freezers in the supermarket sets it off.

hope you feel a bit better now

carole x


Thanks for taking the time to reply.

I work at home on Friday’s so have sat myself on the sofa with my laptop on my legs which still feel wierdly cold inside (even the warm match where the laptop is resting!)

I tried to get a Drs appointment to no avail for today so have to call again on Monday to see if there are any cancellations, failing that it will be at least a week before there is one available which, Murphy’s law says it will probably all have gone away by then.

At least it’s the weekend soon and I can take things easy after what has een a very busy first week back at work after the Christmas holidays - perhaps it’s my body’s way of telling me I’m doing too much.