Had a horrible time last night and almost had my partner take me to hospital. It started with the right side of my back feeling really cold but was warm to the top, then it spread down my leg to my foot. Some parts felt cold inside and others hot. Some pins and needles decided to join in along with cramp like feelings and spasms. It is such a long wait till a neuro appointment
I am on 100mgs a day pregabalin, 20mgs amitriptyline, also take co codamol. I took all my tablets and put the electric blanket on which helped a little.
Just wish I could find out what is wrong, my thinking and concentration is rubbish, speech difficulities again too. As I type this my hands have pins and needles and I can feel my right leg doing its silly thing. The dizzy spells are making me feel sick. How do you get through the limbo?
I am on ESA and have my Atos appoitment next Friday where I know they will decide I am fit to work, too much stress, sorry just needed to rant.
I’m sorry to hear you are feeling so poorly; Limboland is a horrible place (I know, I am there too) I know it’s easier said than done but you need to try and focus on the positives - you’re GP is clearly trying to help as they have secured you a neuro appointment and prescribed you things to try and help. Hopefully, when it does arrive, the neuro appointment will provide you with some answers. Until then you need to try and stay strong and by all means come and rant on here (I know I do!). I hope your appointment next Friday goes well.
I have waited almost 5 months for an appointment, my Dr is rubbish and decided on Rheumatology which I have just had and the consultant was puzzled as to why the Dr didn’t do a neuro one, so here I am again with an 18 week wait. Usually I am very patient, just ran out last night and panicked a little.
It’s nice to have a place to rant and share though
It sounds like we have the same Dr! I have been having flare ups for 8 years - I had my 1st major episode at 19 and was housebound for 3 months. The Dr referred me to the rheumatologist due to a family history of auto-immune diseases and the rheumatologist did lots of tests but couldn’t find anything and sent me on my way with the verdict that it was a virus. Since then I’ve had between 1 and 4 episode a year, one 3 years ago, resulted on me being on crutches for a month but the GP has never referred me to anyone else. A month ago my most severe flare up (since the initial one at 19) began and again my GP decided to refer me to the rheumatologist - the same rheumatologist who discharged me with no diagnosis at 19! I’ve been housebound for a month now and am very frustrated so I understand totally how you feel. I am just hoping that either the rheumatologist will find something this time, when I see him in Jan or he wont and I might be able then to persuade my GP to refer me to a neruologist (so far she says this isn’t necessary) As so many people on here say, it’s not that I want something to be wrong with me; it’s that I know there is something wrong and I’d like to know what it is! It’s the not knowing that drives the stress levels up and makes you panic. Feel free to rant at me anytime
