Had the usual nightmare day. The Taxi driver couldn’t speak English and didn’t know where he was going.
After being dropped off at the wrong health centre, I had to struggle in great pain & drag myself to the right appointment & clinic. Which I gave an hours planned head start & arrived late.
All trying to sort the PiP out, which has gone from full award on both parts, to basic on mobility. After losing my driving licence, job, home, partner & sanity. Then to put up with all this, as well as being told I have PPMS from nowhere.
Seriously! Is this a joke? Surviving 5 years on medication I shouldn’t of been prescribed or taking.
I nearly threw in the towel again today, but I promised my son no more suicide attempts.
What is wrong with this system? My lack of trust in humanity is being tested beyond belief.
It was far better not having answers why I kept falling over. I had a life & then all hell broke loose.
Following your own beliefs surrounded by hooligans is impossible. Become disabled & they become brave. Wimps!
Stay strong fellow sufferers. Ignore those who drag you down. You’ll never win in an argument with an idiot. They will beat you with experience & the truth will show who the cowards truly are. I’m 10x tougher now. Get your calculators & work that out with your wisdom. Money, money, money. Don’t forget to mention the honey. That’s all some care about.
If you have a son then you have a reason. The other day my 4 year old daughter was both surprised and impressed whe I stood up from my chair to get to a top shelf. I’m sure your son admires you greatly. I’m separated from my wife now but the relationship grows with my daughter despite all the nonsense around us. The money thing is a real downer. Are you still reeling from the MS sledgehammer? It’s also very demoralising to have to stop work. What we are very good at is sticking to our guns and pushing for what we want and need. Sometimes it takes a while and sometimes we feel alone. you’re not alone.
Cheers Steve. I know I’m not alone. My son visits every week, when he’s got time. I just want my life back. I’m sick of all the know it alls. Attacking anything I do, since losing what I was coping with already. Trying to convince me they grow the cure for MS in their poly tunnel. It’s plain to me that some people have serious mental problems. Nobody wants the PPMS, they just want anything in my possession & try to force me into thinking the way they do. It’s a twisted situation. All I know is, they are cowards. If they had to cope with not being unable to walk very far, waking with cramps, panicking when they can’t breath & the multitude of problems we get with PPMS already. To be jealous of someone with a health problem is sick. All I want is my driving licence back to get away from the loons & go to the places I choose. Nobody owns me.
Terry, I don’t even know what to say other than to offer you a virtual hug - a huge one mate!
I’ve been tearful again this weekend, between tears and anger, it’s difficult for me not to panic - the fact I’m getting worse is reflected by what gets said during our rows, I’m terrified I’m going to send him over the edge eventually.
I really hope you’re getting sorted out with your PIP. Push for a tribunal if you need to. PPMS is a f***** **** and that’s being as brief and as polite as possible. I hope you know we’re here if you need to spill.