What a whirlwind day I've had - feel a bit blown away :-(

I just want to put my feelings in writing more than anything else(but any advice/comments are much appreciated as i am still very new to all of this) - good therapy I think.

I was dx on 22 August 2012 (a day will NEVER forget) and i apparently have had MS since year 2000. Over the last couple of years things took a downturn hence the diagnosis - won’t bore you with the details).

Anyway, the last couple of weeks have been bad for me - for once in my life, when people have asked are you ok, I have actually said ‘you know what, NO’. Went to see my MS nurse today for a routine appointment and told her what had been happening over the last couple weeks - fall at work through tripping over nothing, numbness in left arm and leg, not being able to do ‘starjumps’ at my martial arts training cos I couldn’t literally pick my feet off the floor, an overwhelming need to wee (not able to ‘hold on’ for a bit like normal) and th most HORRENDOUS back spasm on Sunday which left me ringing for emergency GP and being given diazapam (mopping a floor and obviously took it too far after feeling an initial ‘twinge’ - I’m still learning when to stop lol)

After explaining all of this, I was told to rest immediately and within four hours I have a prescription for pregablin and an urgent appoint with neuro at his ‘private’ (unoffcial) clinic on Sunday at 8.30am as she fears I am teetering on the edge of another relapse. I am really still new to all this so it’s been somewhat overwhelming :frowning:

I love my martial arts training and am due to take my blackbelt test in December, and am worried that I won’t be able to do it, even though they know all about my dx and have adapted my training :frowning:

I am also pi**ed off that I cannot do things like I used to like doing my ironing in one go with feeling like cr@p for the next week :frowning:

Just totally in a bad place. Anyway, the good thing is that my 7 year son is entering his first mrtial arts competition tomorrow so I will hopefully be a proud mummy :slight_smile:

Hi Amanda,

What style of Martial Arts do you practice; Shotokan? In my teens; many moons ago I trained under Enouda at the Budoko Club ; Hammersmith; he was a 7th Dan then so gaud knows what he is now; that was 40 odd years ago?

Since my MS I became a black belt in Origami; lol. Don’t let that put you off; MS affects everyone differently; it is not a stop sign its traffic humps.

You must though obey the restrictions MS lays down; it is no use resisting them; save your strength for battles you know you will win.

Good luck with your black belt Kata and your son is brilliant; starting at the right age…

George

Hi George,

ta for the reply - I actually do multi skilled martial arts, so a bit of everything. I have been plagued with various ‘injuries / conditions’ over the last two years, which I now know were MS relapses! I’m actually amazed i got this far considering, but I have a fabulous program leader (who has actually been my rock and been to every neuro appt with me bless her) and the Instructors are also fab and really understanding of it.

My son has been doing it for the last 3 years, but today was first comp. He didn’t win a trophy but said he was ‘well proud’ for trying :-D, as was I.

I am finding it hard to know when to stop at the moment, but I’m sure I will learn by mistakes - like I did last Sunday whilst mopping a floor.

Hope your are well chuck.