I just want to put my feelings in writing more than anything else(but any advice/comments are much appreciated as i am still very new to all of this) - good therapy I think.
I was dx on 22 August 2012 (a day will NEVER forget) and i apparently have had MS since year 2000. Over the last couple of years things took a downturn hence the diagnosis - won’t bore you with the details).
Anyway, the last couple of weeks have been bad for me - for once in my life, when people have asked are you ok, I have actually said ‘you know what, NO’. Went to see my MS nurse today for a routine appointment and told her what had been happening over the last couple weeks - fall at work through tripping over nothing, numbness in left arm and leg, not being able to do ‘starjumps’ at my martial arts training cos I couldn’t literally pick my feet off the floor, an overwhelming need to wee (not able to ‘hold on’ for a bit like normal) and th most HORRENDOUS back spasm on Sunday which left me ringing for emergency GP and being given diazapam (mopping a floor and obviously took it too far after feeling an initial ‘twinge’ - I’m still learning when to stop lol)
After explaining all of this, I was told to rest immediately and within four hours I have a prescription for pregablin and an urgent appoint with neuro at his ‘private’ (unoffcial) clinic on Sunday at 8.30am as she fears I am teetering on the edge of another relapse. I am really still new to all this so it’s been somewhat overwhelming
I love my martial arts training and am due to take my blackbelt test in December, and am worried that I won’t be able to do it, even though they know all about my dx and have adapted my training
I am also pi**ed off that I cannot do things like I used to like doing my ironing in one go with feeling like cr@p for the next week
Just totally in a bad place. Anyway, the good thing is that my 7 year son is entering his first mrtial arts competition tomorrow so I will hopefully be a proud mummy
Thank Poll - I really just wanted to get my feelings down on paper so to speak but thank you for your reply. I am luck that my martial arts school is so understanding
and Jen, thank you also - I went to MS fatigue group organised by my MS nurse yesterday and it was lovely to be able to share experiences that people understood exacatly what you were talking about - made it seem even mor real to me but I will deal with that - I’m sure i’m in a little bit of denial at moment
As for Alex - well, he did not win a trphy but he did really well as it was a tough competition but both me and him are proud that he entered
i understand how you feel, i worked for 33 years and within 2 weeks of retiring was told i had MS (July 2012)
So all the plans we made gone, but i find its how you cope with it, my attitude is enjoy one day rest the next.
But accept that plans can change at the last minute if your not up to it, but rest and use that time to re-organize.
You can still do stuff but just takes a bit longer, and if you have a problem come on here, somebody will be able to offer advice.
As for the martial arts, if you cant do it yourself theres nothing to say you can’t still be involved and help others hopefully that will be just as satisfying
Hi Amanda, Well done to your son for taking part, both my kids did karate and waiting for their belt results always worried them. I’m glad the ms nurse helped and I hope your relapse is over quickly. I was given IV steroids and though horrid at the time they did the trick. Chis
