Last Wednesday I was diagnosed with RRMS and have been given a bundle of info and the MS Decisions website to look at as my Neuro said it would be good for me to have treatment. Over the last week I have been back to work and when working it kinda takes my mind off it, but when I get home the nightmare begins.
My mind is working overtime at night so not sleeping and I feel like I have huge stone in my stomach that just will not shift - perhaps that is why I feel so nauseous all the time. I was expecting the neuro to give me the dx when I went but even sio, it has hit me like a thunder bolt. I suffered from anxiety anyway and have been on meds for years and the the dx has just taken back to square one with this
My back keeps developing paining knots like cramp, the pins and needles in my hands is awful and last night it kept felt like someone was pinching bum cheeks (fnah fnah!) - there was no one else in bed - honest!!!
I downloaded the form for DVLA and feel gutted that I am perhaps lose my right and capability to drive in the future.
I am also sad that my family (who live 100 miles away) just don’t seem to bothered about what I am going through because ’ a friend knows someone who has had MS for the last 40 years and they are OK’ grrrr.
I also found out on saturday that my eye muscles have weakened somewhat which they are associating with my condition and hence I have to have even thicker ‘bottle bottomed’ glasses
To top it all, I have been to an Interview Under Caution today for not telling the council about my rise and fall in income for housing benefit today - which I totally believe to be assisted with my memory loss symptoms and the stress/worry of having to under go tests over the last two years. What annoyed me a little with that is that the investigator kept saying that i still managed to not take any sick days off work throughout this (I actually used my annual leave to cover appointments/bad days).
I have have literally cried all day.
Sorry for long post but I really needed to get that of my chest.