Hi 
Newly diagnosed and although have been given a whole host of info by the specialists still feel very lost & emotionally raw! Is there anyone who can empathise with this & offer any words of wisdom?
Thank u
Sammy
Hi Sammy, I have fairly recently been diagnosed too. Can totally empathise and have found it very up and down. However, over time I have gradually started to gain more knowledge. I am RRMS and have bad days and better days but do not have days that are symptom free. May only be ‘minor’ but always something. I have just learnt to get on with it and try not to let it beat me. I have RRMS - it does NOT have me kind of attitude. There are lots of information leaflets - legitimate ones that are very useful too. Hope this helps in some way. Take care. Tracey
Hello Sammy, Sorry to hear you have a definite Dx . It is hard to come to terms with but with time and support from your family you will accept it. I found it easier to be able to talk about my fears and worries to my family. It is scary to be told but then reality sets in and once you have a MS nurse you will be able to talk to her and she will advise you on different things. Then there is the MS helpline who are very good, they can send you out booklets telling you a variety of things. Sending you(((((HUGS))))) remember we are all here for you to moan, rant and laugh I have SPMS, you take care. Janet x
Hi Sammy, Sorry you have had a dx, I am newly dx with rrms too, this site has been a godsend to my sanity with words of comfort and support, and the odd joke from wobbly boy! Ask anything on here, someone will answer you. (Tracey/rag doll, I was doubting myself as also am never symptom free, however minor, so thank you for putting my mind at ease with your history) Best wishes Sue x
I was dx with PPMS at the end of January and even though I had ben expecting the dx for 18 months, I still felt stunned and shocked, I was mentally reeling for a few days. I’m coming to terms with what it means to me, but I still have occasional down days. I had a few days a couple of weeks ago where I was very weepy and felt very fragile. I put it down to reaction to dx combined with a bad patch at work, and I took a couple of days off to give myself space to be upset in private.
The better weather is helping lift my mood and make me feel more optimistic, both about how this disease will progress and about how my husband and I will cope.
Take time and give yourself space. If you don’t feel up to socislising, don’t force yourself. On the other hand, if you can sit somewhere nice outside while you read or think, enjoy the sunshine.
I am trying to carry on as best I can with all the things I used to do, I am not giving anything up just because I have MS. If I struggle, I will adapt how I do things but keeping going is my way of fighting back against this disease. It isn’t going to stop me enjoying myself!
Given the unpredictability of ms the best bit of advice I was given when newly diagnosed was:- Try not to worry too much about what might happen because it might not Closely followed by:- Don’t put your life on hold X