Hi all, I had forgotten all about the neuro physio coming today!
Very nice woman, but last time she was here she had suggested going to the gym… and was going to make an appointment to meet me there. Today I told her this isn’t going to happen. By the time I’ve got dressed, booked and waited for a taxi and got to gym, I’d have to turn round again and come straight home to bed.
So I took the time to explain exactly what it is like living with PPMS… and she listened & was understanding. As I said to her, the last time I went out on my scooter was a week ago today. I know to healthy people that sounds terrible… but would you want to go out to the shops if you had a bad dose of flu??? Well that’s what it’s like for me 24/7.
It’s ok. I live with it. I have my lovely gang on here (yes I told her about you guys and how much this board helps me). But I can’t push beyond my comfort zone. I’m too damned ill. BUT I am doing the exercises she set me & the swelling on my knees has gone down somewhat.
And I’ve had the HUG all morning… and then when I got up to see her out I realised I’d had a bowel accident (although was too embarrassed to mention that to her).
Well… that’s been my morning. I’ve just taken half a baclofen to see if it will rid me of the damned hug!
Just needed to get that out of my system. I always make a point of being positive on here… but sometimes we all need to say it how it is… and then of course just get on with it. That’s what we do… and we all do it courageously.
Typing is very weird on here today… there’s a sort of delay to it.
Love to all,