This is my first posting on the PPMS section of the site - I met with my neuro on Monday and the DX of late onset PPMS was confirmed. Have received a letter in this morning’s post re-stating everything. I left a couple of posts on the ‘newly DX’ section earlier in the week but wanted to touch base with ‘people in the same boat’ here. So it’s been less than a week since I was told what I’ve got and the last few days have been a bit of a blur. I haven’t really accepted yet that I’ve got this condition - although I know I have - and I’m not sure how things are going to change.
My walking is already bad and it has been since about May this year. Some sessions (x3) of IV Methylprednisolone are being arranged and I’m already on Baclofen, with limited results. I’ve been having physio once a week for the past 4-5 weeks. At the end of the day I’m grateful to have had a confirmed DX within a few months of symptoms showing but it scares me to think about getting worse than I am. I’m a bloke three weeks short of 47 and I want to carry on with an active life - family and work - for as long as I can. Any advice anyone can give me is appreciated.