Water.

Primary progressive MS
1

My late night thoughts have turned to water.

So many people have encouraged me to drink more water. Now I understand the value of hydration but the deal with MS is that it means more frequent visits. Well it is for me; it’s directly proportional. I have my daily routines and my own measures. I will never be fully hydrated but it beats having accidents. Every accident is a little dent in my confidence. That is more important.

Best wishes, Steve.

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Confidence is something the MonSter loves to stamp all over. I’m already panicking because I have a MAG3 Renogram booked on Wednesday - the idea of drinking 6 glasses of water before it starts and being unable to leave the chair whilst you wait for the procedure to end, then you can dash (with crutches!) to the loo!

Very scared already. I didn’t have the MS diagnosis last time I had it done and hence was completely unprepared - the idea of that now is just trouble.

I’m crossing my fingers that the discomfort I’m feeling, is the stone that they can blast and not because the function of that kidney has worsened… in which case I’ll need an op.

Sorry to ramble but the timing of your post has come at a time I’m debating safest clothing options etc. It’s times like this you really feel that it’s such an unfair disease.

I’m gonna just say, please keep hydrated if you can - confidence aside, make sure you take care of your kidneys & urinary tract

Sonia x

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Here here Sonia. Steve You must drink a lot. I know it makes you pee more. But if you don’t you run a high risk of kidney problems and uti’s. Much worse. A friend of mine has continuAl uti’'s and the Dr’s out it down to her not drinking enough. It i’s a common problem for lot of us. Night Anne X

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Seconded, re the drinking, but yes, I do the same if I have to go somewhere, and cut out drinking until I am home or within safe reach of a loo. Also, remember that an early sign of a UTI is mental confusion, which some of us might just think is part of the bundle of goodies from MS.

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Well, renogram done, I had to stop the procedure twice to go pee and still ended up needing to get changed after it. Diaretics (sp?) are just cruel when you have MS… at least it’s over with and the staff were all so lovely to me. The lady doing it wanted to help me on with my shoes before I dashed off to the loo - I needed the loo far more than shoes!

Glad it’s done, just praying they can zap my kidney stone and I don’t need surgery. In the meantime I’m guzzling like water is going out of fashion as I need to attempt to bypass the headache that radioactive material will probably give me

Sonia x

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Thank-you for showing care about my reluctance to drink too much water. On a normal day, I am quite prolific with the tea pot. It was just that I’ve been going out quite a bit and get a bit cross about not being able to drink too much for the usual reasons. Well done Sonia. x

Steve.

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