Hi everyone
Sat here with agonising hug and burning legs, and that’s before I go to bed, when it normally is worse…MS sucks…really b****y sucks.
I am fed up of this, and also pain killers that make you feel like a zombie.
Sorry to moan, but I feel like I need to scream, but can’t do it at home, so here is my virtual one aaaaaarrrrrgggghhhh.
Nite everyone, let’s hope tomorrow is good for us all.
Pam x
I don’t suffer with the hug but my legs, specially my feet, burn most nights it’s torture so you have my sympathies. I try to cool down before bed by turning the heating off early and shedding extra clothes but no chance tonight. I’ve had the heating on all day trying to dry a carpet I had cleaned this morning it like an oven
Scream all you want Pam we don’t mind.
Jan x
What was the line from Alien?
In (cyber)space no-one can hear you scream. It’s not true. We’ve just heard you loud and clear. And why not. I get the legs always and the hug sometimes. Occasionally the left will be like the proverbial dead fish; dead but twitching like it’s had ten thousand volts stuck in it. Yet we still go on. True warriors. Battling through the brain fog on the field of hope.
Best wishes, Steve.
Hope you get some sleep Pam, I am just in bed with two painkillers and a few games of freecell on me kindle then sleeping till morning if we don’t get another storm. It was lashing down earlier beating against the Windows.
Nite folks
Don XXX
So sorry to hear this. I like Steve’'s post and totally agree with him. I have terrible problems with my legs and feet Gets worse when I a un bed. So scream away. You are allowed. Sending hugs Anne X
Hi y’all,
Ditto - ditto - ditto - ditto and ditto!!
Screams coming over loud and clear! Can yea hear me from the very N of UK.
Pain relief has now worn off, as usual.
It’s 4.30 a.m. and am sitting with more pain killers and a cup of tea made by my “long suffering” partner (don’t tell him I said this he’ll be hurt) wishing the bloomin’ pains would just go away. Keeping smiling
Very gentle hugs everyone.
Anne
Hi pam, scream all you need,i hope you got some sleep after it.
J x
Go ahead and scream all you want Pam!
Hope you got some sleep and feel bit better today (well hope you feel a LOT better today!!!)
Pat xx
l use magnesium oil - massage into aching muscles and joints. AND l also take magnesium supplements - Magnesium Malate - and Magnesium L-Threaonate. And vitd3. This along with a couple of sprays of Sativex at night - does make my legs behave at night - gives me a lot of comfort without taking pain-killers etc.
Hi Pam,
I thought night I could hear some loud noises coming from the direction of Stroud! I do hope you got some sleep, it’s s!!t this business , isn’t it?
Really hoping that today is better for you Pam.
Sending you virtual hugs and virtual chocolate!
Take care,
Love Nina xx
Hi everyone
I am sorry not to reply individually, but thank you all my wonderful friends, your words mean so much, and is really appreciated.
Last night was a right bummer, and today everything hurts and feels weak, so it is (yet another) day of doing nothing. At least the sun is shining, the ducks have already visited, so watching the little birds devouring what the ducks left.
Hope today is good for you all, take care.
Pam x
Hey Pam you’re allowed to scream and rant, you help loads of us when we’re doing it, it’s only fair you do too. It helps anyway I think, it’s not good to keep it all bottled up. Plus we all know and understand how you’re feeling. It does suck tho, no doubt about it. It’s a piss take actually… I hope when you wake up in the morning it’s a better day for you & you’re not as sore x
Yep, it’s no joke when they call it a MonSter, I have a hissy fit about something every so often but I also have tears too frequently.
Scream if you need to
Sonia xx
Thanks friends, I have slept 13 hours last night, and today feel better for it, sleep deprivation with pain is no joke.
Not going to be doing anything this weekend, just a nice quiet time, sunny here.
Pam x
Enjoy the sun Glad you slept. Anne x
Rants and screams completely valid. I did scream once when my wife was out but unfortunately despite living in a detached house I managed to scare my neighbours. I felt like a total plumb and had to apologise like a naughty schoolboy…
Hi Pam, so pleased to read you are feeling better now hun.
It`s a chuff, the pains and problems we have. It does help to know we have all this support here.
I added some extra meds just a couple of days ago, as I was having chronic pain and discomfort in bed. Quinine and an extra 25mg of amitriptyline has helped quite a bit.
Onwards and upwards eh?
luv Pollx
Pam I’m sorry to hear you’re having a tough time. I do the silent scream a lot too (semi detached house, small village with lots of busy bodies). I hope it’s helped, you’ve had a quiet weekend and are feeling better??? MS is really a pain in the rump and many other areas. Take care.
Cath x
Totally agree Cath, the ‘silent’ scream is useful, I think if I ddone a real one, I wouldn’t know when to stop.
I do feel better for rest, thank you, and I hope things are being kind to you.
Pam x