Fed up

Hi everyone

Hope today is being good to you all, and you have some sunshine like we have here.

I am sorry to say I am not doing very well at the moment, both physically and mentally. I am so fed up of pain, both MS and now RA, and not sleeping well.

I don’t seem to be able to tolerate strong pain killers without the side effects being so bad, and mild ones don’t do diddly squat, the Rheumy at the moment has put me on steroids to see if they will help, so there is no chance of sleep, thy make me like a coiled spring.

Trouble is when I am not on top of physical problems, this makes me so low and depressed, same for lots of us I suppose, I just don’t want more medication to take.

I keep telling myself Spring is nearly here, and I have got on top of this before, so I will do it again, it’s just so tiring, but I will get there.

Hopefully by writing this down I will find it cathartic, and just the kick up the b** I need. Take care everyone.

Pam x

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ello Pam.

its sometimes just too hard to keep going...but like me, Im sure you`ll find your way back out of this awful time.

My hubby has RA and injects weekly with enbrel. but he recently has had a change of supplier and the product isnt exactly the same. He has a flare up in his wrist joints.

Has it helped to tell us how things are?

chin up darlin!

pollsx

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Hello Pam.

Sorry to hear of the pain and your depression.

The only thing to do is to keep going. Every time I get up of the chair it hurts. But the pain passes and I can do things in my wheelie.

Writing about things has certainly helped me; hence the subsequent blog rolls I post on here. I’ve just remembered I did one in the dead of Monday night I could share. In fact, the writing, like the cooking has become addictive.

Best wishes, Steve x

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I feel you, I have a really positive blog I want to write and 6 odd weeks later, I still haven’t started it. I had a SAFO fitted a few weeks back and that’s messed with me in a bad way physically so I’ve really been keeping my head down but I’m hoping I’ll be feeling a bit more positive after I see orthotics next week

Take care hun, there’ll always be better times

Sonia xx

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Oh Pam So sorry to read the above. I haven’t been on for a while. Not doing too well myself. Constant pain is getting me down and I can’t take many things either. My sleeping is awful. About three hours a night in total. We have suffered a bereavement too which is very hard. Like you though. We will keep going. We are strong. Sending love Anne x

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Oh Polls, it is hard trying to get my head around all this, but you’re right, I WILL bounce back, I have no choice bar to.

At the moment I am just so tired with the pain, hopefully the steroids and Planqueil will help, they tell me the steroids should work quite quickly, but t’other thing takes 12 weeks to kick in.

Hope all is ok with you and your family, take care Hunni.

Pam x

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Hi Steve

Sorry to hear about your pain, but like you I will battle on, we have no choice.

I am glad you find your writing cathartic, I most definitely always look forward to reading it, so thanks for doing it.

Pam x

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You’re right Sonia, there will be better times ahead for all of us. I so hope you feel more positive after the next appointment, take care.

Pam x

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Oh Anne, sorry you are going through it as well, there seems nothing worse than constant pain and then no sleep to be able to cope, and to have a bereavement on top, surely is too much, I feel for you.

Try to take one day at a time, and rest as much as you can, take care.

Pam x

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Hi Pam,

I do feel for you and I’m so sorry to read how much pain you’re in and how down you feel. It all gets too much to deal with at times, doesn’t it…more especially when you don’t get enough sleep!

Sending you big hugs and hoping very much that you’ll soon be back on track,

Take Care,

love Nina x

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Hi Nina

Yes you’re right, lack of sleep compounds the problem, but we shall fight on and tomorrow is another day.

Hope you are doing ok, take care.

Pam x

hi Pam, sorry you’re having a tough time of it.hope you feel better soon, winter’s been a bummer for a lot of us,i know its been very hard for me, thank god spring is nearly here.The days are that bit longer now too, love it when its lighter on a morning.I am feeling a bit better just knowing this, and looking at my lovely garden full of daffodils helps just a little bit too.

(((((((((hugs))))))) hope you start to feel better soon.

J x

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Thanks Mrs J for your kind words, I agree winter has been hard, but Spring is almost here, and like you my daffy look lovely.

Take care (((hugs)))

Pam x

****daffs not daffy!

Pam. X

HaHa! Pam, I had a vision of Daffy Duck running about your garden, that really cheered me up. Sorry you’re not so good at the mo. Hopefully the meds will kick in soon.

It doesn’t help that you can’t sleep. Thankfully that is something I don’t suffer from. As soon as my head hits the pillow I’m off. I can sleep for 10 hours no bother and have a nap through the day.

We are away to a cottage tomorrow with the family to celebrate my husbands 60th birthday for a few days. I’m not looking forward to the drive there as my husband never understands that when I say I need the loo. It’s now, not 10 miles down the road, plus I have to wear a glorified nappy with awful pants to keep it in place.

To think I used to be bothered about my panty line showing.

Yes it’s getting lighter and Spring is round the corner. Happy days!

Mags xx

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Hi Mags

It made me smile when I read it back, perhaps it was fate, I needed that. Hopefully when I Finnish the steroids I shall find a sleeping pattern again, they make me so wound up, but everyday is one day less.

I hope y ou have a lovely break and your hubby has a great birthday. I so understand what you say about the pads, but they give us confidence if nowt else.

Safe journey.

Pam x