I have recently started on vitamin D3 taking one capsule per day containing 5000iu/25MCG. I’ve only been taking it for around a week and must say I have noticed quite a difference already. I had been taking drops from Holland and Barrett at around 1000iu and hadn’t notice much at all.
I have just ordered 2 packets (one for my daughter) from my mail order supplement company and will continue to take them throughout the winter. Amazing is all I can say
I did try and raise the subject with a Neurologist several years ago and he completly ignored me! Ok I don’t think he was an expert in MS but really. I also spoke with and MS nurse who seemed to know nothing.
It appears that not everyone gains benefit from vitamin D3 but why the devil doesn’t anyone from the medical profession give us these vitamins, or at least recommend that we buy them ourselves? My packet containing 240 tablets costs £6.99. Or is there some danger in taking them that I don’t know about?
Hi Wendy, mine just arrived this morning and I just took first one.
I bought on Amazon from Healthy Origins, 5,000iu. 360 softgels for £10.18. Free p&p.
Best thing about them is they’re very small as I have prob’s swallowing big capsules.
As far as I can tell from surfing internet, there is absolutely no danger in taking this amount and in fact people are taking much higher doses without any problems.
Do you think it is helping to repair damage or is it just stopping you getting symptoms whether new or old? I might well try these myself. I am desparate for anything that will help repair the vertigo I suffer with. Great to hear they are helping you x
Do you think it is helping to repair damage or is it just stopping you getting symptoms whether new or old? I might well try these myself. I am desparate for anything that will help repair the vertigo I suffer with. Great to hear they are helping you x
Hi Claire
As far as I can tell my MS is the same, but I noticed that I have felt brighter than I’ve felt for a very long time.To feel good has got to be a bonus. I suppose it would take time to know just how good it is. I did read that whilst on Betaferon the body absorbs more vitamin d.
Saying all this, a word of warning, you can still do too much and have a bad day, we still need to pace ourselves! As I have found!
I also take vit D but 3000iu plus Adcal D3 which my rheumy prescribed for me. My neuro said nothing at all about taking vit D and I wonder after reading so many posts saying they are taking much higher doses than I am that it may help me to take more. I take it for Lupus and Ankylosing Spondylitis but can honestly say I don’t feel any difference as to how I felt before taking them.
Hi Claire, in research they have found that it can help in RRMS by having fewer relapses.
I’m PPMS and hoping it might slow down progression.
But also I think we live in country where we don’t see a lot of sun in winter months (or summer months come to that), and sometimes I don’t go out for days (sometimes weeks) on end… so must do some good even if it doesn’t help the MS.
Lots of research though… it’s worth googling ‘Vitamin D3 and MS’.
I started taking Vitamin D3 within a few weeks of being diagnosed.
When the neuro informed me yes I did have ms I asked him about it and he said evidence is looking good, although he couldn’t prescribe it on the nhs. What he did say is it’s worth taking and that I should not bother taking doses under 5000iu.
So that’s what i take every day, i buy 360 days supply once a year for about £15 which I think is reasonable, I can’t honestly say I am noticing it doing anything at all, but I can say for £15 a year I’m happy to keep taking it daily even as a simple placebo.