Just some info ( but you probably all know about this anyway..}

HELLO ALL!

I HAD AN APPNT WITH MY MS NURSE LAST WEEK. WE HAD AN INTERESTING CHAT ABOUT GOOD OLD ’ VITAMIN D ’ AGAIN.

SHE TOLD ME THAT THE POWERS THAT BE, NICE; SCIENCETISTS ETC ARE ACTUALLY PROPERLY STUDYING THE EFFECTS OF THE VITAMIN ON PPL WITH MS. SHE THEN TOLD ME THEY HAVE FOUND THAT A CERTAIN AMOUNT OF THE VITAMIN D HELPS TO ’ PROTECT’ THE MYELIN. ALTHOUGH, I HAVE A TERRIBLE MEMORY AND OFTEN GET THINGS ‘CONFUDDLED’ LOL! SO PLZ DONT QUOTE ME ON THIS DIRECTLY?

ANYWAY, SHE BASICALLY TOLD ME THAT THE POWERS THAT BE WERE NOT THAT FAR AWAY FROM OK-ING IT AS A POSSIBLE ALTERNATIVE THERAPY TREATMENT AND IF THEY DID OK IT,THEN MANY PPL WITH MS WILL BE ABLE TO ACCESS IT FROM THEIR GPS ETC.

SHE TOLD ME THAT YOU HAVE TO BE VERY CAREFUL BEFORE THIS HAPPENS WITH HOW MUCH YOU TAKE AS TOO MUCH VIT D CAN CAUSE OTHER SERIOUS PROBLEMS. I THINK THERE IS A PROBLEM WITH YOUR LIVER BEING EFFECTED OR SUMMIT.

I WAS JUST HAPPY TO HEAR THAT THERE ARE NONE SERIOUS SIDE EFFECTS TREATMENTS BEING TESTED TOO.

ALTHOUGH,PLZ BE AWARE THAT I AM USELESS WITH PASSING ON INFO.SO VERY LIKELY I HAVE GOT SOMETHING WRONG IN ALL OF THIS. SO THE BEST THING AS ALWAYS IS TO ASK YOUR MS NURSES AND CONSULTANTS.

I HOPE IT WAS OK TO POST THIS EVERYONE?

AS I HAVE READ THE THREADS AND APPARENTLY THERE WAS SOME PROBLEM WITH OTHER POSTS ETC. SO DONT WANT TO OFFEND OR HURT ANYONES FEELINGS OR MORE IMPORTANTLY GIVE OUT FALSE HOPE. AS THIS IS OBVIOUSLY NOT A CURE OR A PREVENTATIVE OF RELAPSES AND I THINK IT JUST HELPS WITH SOMETHING BUT CANT REMEBER EXACTLY WHAT NOW. ONLY IT WAS A GOOD IDEA POSSIBLE TO START TAKING VIT D FOR SOME.

HOPE THIS IS OK TO POST?

IF NOT THEN I APPOLOGISE IN ADVANCE AND ALSO THANK ANYONE WHO REPLIES TO ME.

TC

Anna X

hi anna

my ms specialist gave a talk at a conference organised by my local ms society.

he said that vitamin D was good for us, so it looks like your right!

now is there a supplement for my dodgy bladder?

carole x