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Vitamin D Waste Of Time Article

I’ve just been reading the article in the papers that have appeared today about Vitamin D being a waste of time taking.

Apparantly research in France show’s that a deficiency in Vitamin D is age realated and also a symptom of certain illness’s and not a perhaps an underlaying cause.

Here’s one write up :

www.dailymail.co.uk/health/article-2519082/Vitamin-D-supplements-dont-lower-risk-cancer-strokes-conditions.html

I take D3 daily after being advised to do so by my MS consultant, my sister also has MS and she also takes D3.

I can’t find anything in the articles that mention D3 specifically, so I’m assuming these write up’s mean Vitamin D in general ?

I’m, just wondering what your thoughts are these articles.

Kerry.

Hiya Kerry

I’m on the fence with this one at the moment.

Currently I’m giving D3 a go. I had a blood level test in March showing a feeble level of 13. GP then put be on 3 months of 10,000 iu daily. My levels went to normal after a test in June. No supplements at all since then and I’m off for blood test next week.

Me and my GP are ‘experimenting’ with this. My neuro said there is no definitive evidence on this for MS last month but he doesn’t mind 4000 iu daily.

My local paper regularly has an NHS adverts. Sometimes the topic moves on to vitamin D and advises to take it.

Soooo it’s seems a bit of a mixture and personal choice. Blood tests are important though. Don’t want toxic levels and other knock on effects.

Marty

I’m on-the-fence regarding healthy people supplementing, supposedly to “ward off” future problems. I think many people take unnecessary supplements - and I’m not talking just of vitamin D now - when they’re probably getting sufficient already, unless they’re on a very restricted diet.

However, whilst it may well be “a waste of time” (but more especially money, I would have thought) for most who are fit and well, I don’t think the same argument extends to people who already aren’t well, and know their disease has been linked with vitamin deficiencies.

I think taking as a precaution is quite different from addressing a condition you know you’ve got. One might be a waste of time, the other isn’t.

Tina

Have to admit that I have never been totally sold on the idea of vit d and I do not take vit d supplements. I’ve seen so many theories come and go over the years that I will be surprised if vit d deficiency is the one that transforms ms treatment. Another reason for me not being as convinced by the vit d theory is that I grew up for a while in a very hot, sunny country. But I’m not saying that others shouldn’t take vit d supplements and I think that Marty and Tina make very good points. Cheryl:-)

The article I read on the BBC was talking abut Vit D for other illnesses, absolutely no mention of neurological stuff, it was on BBC news page yesterday :slight_smile:

Sonia x

I will keep taking my D3 until my consultant tells me otherwise.

I think though that perhaps this is half the problem, as soon a someone in “the know” ie: consultant, doctor or even another sufferer , offers advice, we tend to grasp onto every little thing he or she may say, at least I do anyway.

When I was first told about my MS, my consultant advised me to take D3, and explained his reasons behind it, so I went into my local health shop to buy some, and within 10 minutes after speaking to the health shop owner I had bought nearly every item on the shelves, in other words, even more advice from some “in the know”.

I’ve spent days, weeks, months, reading up on D3, and in all honesty, for every positve write up you will find theres a negative one to match.

So I think it really is a grey, unproven area.

I think the point these articles are making is that this “wonderful sun” vitamin, actually shows no proof of working for any particular illness.

Maybe these writers are saying if theres no proof that vitamin D works on the mentioned illness’s we should bare in mind it’s probably the same for MS.

I dont know, but like I say I will continue taking D3, because in my mind my consuiltant advised too.

In fact his words were when hebroke the news to me about my MS was, " If I was sitting in that chair, and I was you, I would get onto D3 immediatly" !

Dont know how I posted that twice. LOL

I’m not dx but was put on it by neuro as the only thing that showed in my bloods was low vit d Quite happy to take until I’m told to stop especially coming into winter Axx

I may be reading into this wrong, but from what I can make out from this latest research is that they think low vitamin D levels are a symptom of illness, rather than a possible cause of the illness.

So in other words, people with say MS, could be showing low levels of vitamin D simply because the MS is causing the low levels, rather than actually developing MS because of the low levels.

Yes Jactac, that’s what I think it is saying too. Cheryl:-)

I do agree that’s what the article is saying. However, when I last saw my neuro - I use the term loosely, as it was the first time I’d ever seen that particular one - he was very confident it will soon be established beyond doubt that vitamin D deficiency is a factor, and not just a symptom.

He was the first medic in three years ever to mention I ought to be on supplements. Luckily for me, I hadn’t waited for the cogs of officialdom to tell me what I was meant to be doing, and had been supplementing anyway, after researching it myself.

I think most neuros and most MS nurses now agree Vitamin D supplements are “a good idea”, but it still seems a bit of a lottery whether they remember to tell the patient. I’m amazed that three years was the first time anybody broached the subject with me,

Tina

I take 5,000iu (125 mcg) of D3 a day, but only since this was recommended on the Professor George Jelinek diet. This is a hefty dose, but Proff GJ says that an amount many times larger than this is fine too. I don’t know about anyone else on the forum, but I have always suspected that MS is at least in part affected by or caused by diet. I don’t stick to the diet half as much as I should, but (two years on) I have at least improved. But with MS, you never know. Merry Christmas to everyone on the forum.

Moira

When I saw my consultant he immediatly advised me to start on D3, so when I went home I rang my sister, who also has MS, and asked her what dosage of D3 she was taking, but she had never heard of D3, not from the consultant, or anyone else from the clinic.

I just find it a bit odd that if D3 is about to unlock some very important issues about MS, then why is it not offered as a basic starting treatment/therapy to all people with MS.

When I asked my GP, (who has been great from day one), if D3 is available on prescription because the consultant advised it, she told me it was the first time ever that she had heard D3 might play a role in MS, and she has a number of patients at the surgery with MS.

My sister now takes D3, after she rang the MS clinic to ask about it.

My point is, why is this info not shouted from the roof tops, if D3 is perhaps so important.

Perhaps I should not say this but, do you think a lot of treatments and advice varies depending on the age and attitude of the consultant, for instance my consultant comes across as youngish very positive person, so maybe he is fresh in his field and looking for answers and new options to help with MS, where as someone who has been “in the job” for many many years could just be sticking with routine.

I dont know, just a thought.

You might have a point there, Jactac.

This neuro I saw last time was not one I’d heard of before, or even seen around (as the MS centre is quite small, I know most of them by sight, even if we’ve never been formally introduced). He did seem very new and enthusiastic, so I wondered if he was newly-qualified.

Then again, I think he was over 40, because the subject of age cropped up - not in an explicit way, but that sort of understanding between people of similar ages, where one (me) says: “Well, I am over 40…”, and the other answers in a way that suggests: “Haha, me too!”

It’s getting difficult to tell these days. First policemen start looking younger, then doctors, and finally politicians!

Tina

x

Hi, I’ve struggled to take supplements for years, but recently saw Michael Holick give a presentation on the importance of vitamin D on the internet, so decided to give it another go. I’ve been taking 5000IU a day now for about a week and am currently reading his book “The Vitamin D Solution”. I also started following a paleolithic diet in August, and I’m sure that’s helped my body accept D3. Lots of good fats. I can honestly say that I do feel small benefits - I overall have a bit more energy and I feel more alert. I’ve read so much now that I’m sure that my MS was triggered by a leaky gut and lack of vitamin D. I’m now working towards healing the leaky gut and rectifying the vitamin D. I’ll arrange for a blood test in the new year, see how things are going. Heather

Hi I thick it does depend on the Neuro / years of experience/ how active they are in research and staying up to date. I’ve been advised vit D supplimentation by 2 MS specialists. If I remember correctly it is part of the NICE guidelines for MS also. So it is something that should be being suggested to MS patients.

As to whether it really does make a difference - I’m not sure. There’s so ,uch about MS we don’t know - only time will tell.

Reemz

X

Heather, that’s really interesting, I look forward to your update and hopefully also be following your lead with the book, Thankyou Sending hugs x

Jactac, I’ve read your comments with interest. The problem seems to be that not enough information is shared among professional on this whole subject. That’s the reason it takes so long for us all to get the help we need. I’m sorry to sound like a moaner but I joined this site 2 days ago and have learned so much more than I have from professionals in this field in 7 years! But then perhaps we are the professionals as we are the ones going through it and keen to share anything that might help someone else. What a great site, thankyou all, I’m so happy to be part of it and so pleased I finally decided to check it out. Sending smiles

hey awkward

8 years ago my gp said to me i have limited medical knowledge but u have the body so we will work together to do our best for you. neuro seeing me once in a blue moon doesnt know owt re me (def not his fault!)

so i reckon u are right-we are the experts of our own body requiring support from someone medicaly trained and who has professional access to neuro and who can communicate on our behalf the neuro appt is often(not always) a scary experience whereas gp appt is generally more relaxed. i know there are many exceptions to both scenarios!

i believe that no-one knows it all for definite-ms is so complicated and affects us all so differently. the thing that i appreciate most is honesty-professionals saying they dont know is ok by me-prefereable to false hope or fibs!

glad u r benefiting from this site, ellie