Hello again Janet,
I didn't tell my nurse/neuro or anyone i was taking vit d in the first place. I started with 1000iu and when i had my neuro appointment i asked him if i could have a blood test to check my levels.
I called my ms nurse for the results of the blood test to be told that my level was 140. As the level should be 150-225 i thought it a bit low so i got a little advice from people on here and i started 5000iu.
My nurse told me my levels were fine but it was my decision.
There is a lot of info out there about deficiency in vit d. The ms society do a publication and so do the ms trust.
If my levels were as low as yours Janet - i would be taking at least 5000iu - if not 10,000iu.
Some people i spoke to on here told me they take 5,000iu and 10,000iu on alternative days.
This is only my opinion but if you up your levels for a little while and then get your bloods checked again - you will be able to see if it has gone up. If they are still low - you will know you will need quite a high dose.
I am glad you are feeling a little more positive Janet. It must have come as a shock. As i get new symptoms i sometimes feel like i am being dx all over again,
As some people have said spms is only a label - i still have rrms but i have felt so ill in the last 18 months that i have hardly been out the house, and i have been told my ms is mild at the moment!
It doesn't feel very mild! but to look at me you would never know i had ms. It is invisable to others but a battle sometimes to me.
Remember - the vitamin d is only my experience/opinion. I hope you get more replies so you can make an informed choice. Your ms nurse may be able to advise you as well.