I am booked in for a VEP test on Monday morning at the hospital in the next town which means I have to get up at stupid o’clock to be on the 7:30 shuttle bus from my hospital
I had come to the decision that the lack of urgency to my follow up appointment meant that my lumbar puncture results had confirmed the neurologists ‘diagnosis’ and there was no worry that it could be something much worse (I had 3 white spots on my MRI)
Now I’m worrying again that they don’t know whats wrong with me and I still cant get a neurology appointment before June, I phoned again yesterday and they said I’m on the waiting list for one.
I saw my GP yesterday and he said my results are in but he doesn’t understand them, only a qualified neurologist can officially diagnose me. But he did swap my pain meds from Amytriptiline to Naproxen because of the nerve pain in my right arm.
Hopefully they are just covering their bases and a VEP test was mentioned when I was in hospital so maybe it has just taken two months for the referral to come through.