Has anyone or does anyone suffer with vertigo and nausea whilst in bed? Just recently I’ve been having both. Now I know that of you suffer with vertigo you’re supposed to lay in a darkened room. That’s where I get vertigo! The last two or three weeks as soon as I get in bed and lay down the whole bed seems to be spinning and spinning very fast again that. Not for long, maybe just a few seconds. But it’s not a good feeling. Then I get nauseous. Often feel sick in my mouth.. saliva or phlegm if you will but, still tasting sick. Sorry, can’t phrase that any other way. I normally have to get back up and rinse my mouth out with mouthwash after first swilling my mouth with water. Any insights or suggestions would be helpful. Oh, when I lay down I don’t just flop back but lower myself extremely gently since these symptoms have started. Still getting the spinning very fast though.
I’m sorry you’re experiencing this horrible symptom.
I’ve experienced vertigo several times now, my first experience was December 2023 when I was diagnosed. At first they thought it was Ménière’s disease which is all to do with the ears and the treatment for this is usually betahistine. But that made my vertigo worse, so I had methlyprednisilone and anti sickness medication. Mine was put down to a relapse and lesion on the brain stem. Speak with your GP/MS nurses for advice and hopefully treatment.
I hope you get some relief very soon as know how miserable it can be with vertigo.
Hi, animali. When do you find the vertigo worse? Laying down, like me? Or does it affect you no matter what position you’re in? Standing? Sitting?
It affects me more with sudden head movements, it’s worse when my ms is acting up like when you’ve an infection, or going through a relapse. I’m ok with laying down, but because of gerd I can’t sleep flat so my head is elevated on a wedge to reduce the acid coming into my mouth.
Have you spoken with your gap or MS nurse regarding this issue as they’ll be able to assist you.
I’ve got an appointment with my GP next week and I’ve actually got an appointment with my ms nurse in a couple of weeks. It’s been a good while since I’ve seen my ms nurse. GP is only a phone call, although I would have preferred a face to face. At least my appointment with the ms nurse is face to face. I’ve actually been invited to an ms society event, tomorrow. Might be some interesting people there to ask, as well.. knowledgeable people that is.
Oh that’s good, as know it can be quite difficult to get a doctors appointment in certain areas of the uk. It’s a shame it’s a telephone appointment, but make some notes so you remember all the issues you’re dealing with that are concerning you.
You may get some help at the Event held by the ms society, so it may be beneficial too you. Sorry you’ve got to wait another couple of weeks to be seen with the ms nurses.
But unfortunately that varies in different area’s of the uk.
Take care and i do hope your face pain find a relief.
Hello,
Do you think your symptoms also come in when you turn over in bed? Bend forwards? It could be BPPV which is unrelated to MS.
If it’s BPPV, you could have a manoeuvre called the Epley performed or you could do it yourself.
Hi @CocoPops. What is BPPV? And the Epley manoeuvre? I’ve not heard of them. When I have the vertigo it’s always just when I first layed down. It doesn’t happen any other time when I’m in bed. It doesn’t happen to me at other times ie, standing order sitting. Just first thing when I get in bed at night. It’s coming too, that I dread thinking about getting into bed at night. It is only for a few seconds but, the bed does seem to be spinning and spinning very fast at that. It happens virtually every night now. I have had episodes of vertigo before. Not for many years now though and they tended to happen when I was standing. Probably ten years or maybe more now. These latest episodes have only been going on for three weeks or so and only laying down.
BPPV (benign paroxysmal, positional vertigo) is a type of vertigo which is caused by loose ‘crystals’ in the inner ear. When certain head movements are made, it causes short lived, but intense, vertigo. The Epley manoeuvre is a head manoeuvre which can be used to reposition the crystals. GPs can test for and treat it, or they can refer to a service such as physio or audiology for further testing and treatment.
You could try looking on YouTube for a video of someone doing the ‘diagnosis’ manoeuvre (called the Dix Hallpike) and the treatment manoeuvre (called the Epley) which you could try yourself at home, depending on your mobility.
If you look online for information about BPPV, you might be able to decide if it sounds about right or not. Your GP could also refer to ENT for further assessment.
Thanks @CocoPops I will have a look at it. And I will try to get my GP to help. Can only ask her.