my partner has RRMS, he has been diagnosed recently and is only 31, he has believed to have had it for around 5+ years. Around 4 years ago to last year he kept having UTIs so bad he paid for private doctors but they kept giving him antibiotics that didn’t help. He solved this by frequency therapy but for the last month he has been having a urine sensation, sometimes cloudy urine, sometimes red urine and sometimes normal but no smell and no pain sensation, he also empties his bladder normally. He went to a Urologist and he doesn’t have any UTIs but he cannot rack his brain around why he is getting these and is worrying about what it is. He has an appointment with his Doctor in October but is really struggling to deal with what is going on as the internet tells him so many different things (I advise the internet isn’t always good to research on)
I’m sorry you’re experiencing this type of issue, I would suggest seeing your GP and asking for a referral to urology for further testing. Ask for your urine to be dip tested, as passing blood, cloudy urine could point towards an infection. If there’s issues around emptying the bladder, not being able to start, poor flow, having to get up several times in the night. These are issues the urologist can assist with. But I would suggest starting with your GP.
Mine started before my ms diagnosis, and was picked up I’m unable to fully empty my bladder, frequent UTI’s, slow stream. It was recommended to self catheterise, and I had all the testing completed by urology. They’ve been very helpful with this, and at present I’ve got a follow up in a couple of weeks time.
Apologies but I’m wondering why your partner saw a private Dr in the first instance and when you say he is seeing ‘his Dr in October’ is that again with a Private Dr or are you talking about his neurologist? If it’s with a private or NHS GP then October is a long wait!
From what I’ve read, pink urine is usually a sign of blood in the urine and can be caused by several things ranging from vigorous/ strenuous exercise to things like cancer.
If it was me I would go my GP , get my prostate checked ( finger up the bum and blood test) , and ask for my kidneys to be checked out.
I would also talk with my MS Nurse about being referred for bladder tests - is he emptying his bladder fully or is urine staying in his bladder and somehow picking up blood.
it’s most definitely worth getting everything fully checked !
Thank you for your reply, he has been to see many doctors and even went to Germany for their best urology, all come back with no infection. He has no pain at all, there is just sometimes urine urges but not persistent. He’s not had a UTI for 1 year now but he is very worried it may come back but all testing leads to no infection at all.
The urges are what is bothering him and because it’s hard to explain he researches so much that it tells him 100 different things.
I believe from reading different comments on this site that it’s very much related to MS.
Has this been taken up with the MS team, then - MS nurses or neurologists? They will be very familiar with urine problems linked to MS, especially urgency.
Some years ago I went to an MS info day, there was an MS nurse there who had previously worked as a bladder&bowel specialist. There was a whole list of things they could do to help. So perhaps worth talking to someone who has a neurology background?
He has spoken with his MS nurse his GP, but because it’s consumed his brain he wanted second opinions. No infections are present just the urges he gets is irritating him.
Bladder urgency is fairly common in MS folk. I experience it and it’s a real nuisance especially when out. I bought myself some sheath catheters whi make for a much more relaxed time when out and about.