I’ve suffered urge incontinence for some time. I’ve had solefenacin, it helped a bit at first. I learned to self catheterise, but still get urgency problems, so my GP doubled the dose. Still no improvement, so he put me on the maximum dose of Tolterdine, there was still no improvement, so now I’ve got oxybutynin to try, starting on 5mg with the option of increasing it to the maximum dose of 20mg.
If this doesn’t work, it looks like it’s something I’ll just have to put up with.
I started on oxybutynin for urge incontinence which worked for a while before the problem worsened! Then I was put on solefenacin which has worked for about a year but recently the incontinence is getting worse. Funny how the order you and I were given oxybutynin and solefenacin have been reversed. Sorry I’ve got no advice I guess you’ll have to wait and see how it goes.
I am sure there is a solution that will provide relief. Bladder problems are no fun regardless of gender. Your GP is not a specialist so I would suggest you ask to be referred to a specialist. You will probably have some bladder tests. Bit undignified but what the hell.
For starters I suggest you give up caffeine. The consultant wanted me to give up both caffeine and alcohol. The registrar took sympathy and suggested I just start off with caffeine. Well it has made a big difference, life is a lot easier
I was taking slow release tolterodine but this has been changed to tropsium chloride, that also made things better
Obviously I self-catheterise as well, been doing that for about 7 or 8 years.
Thanks Patrick. I gave up caffeine a long time ago, long before my diagnosis with MS. As for alcohol I don’t drink much or often, I’m unsteady enough on my feet without putting alcohol in the equation!
When I asked my GP if it was something I’d just have to put up with he assured me he won’t give up.
Hi, I have tried all the meds for urge incontinence, but none of them worked. I self catheterise, but still get urgency and leakage. The continence nurse didn’t seem to have any other ideas as to what to do, I just have to put up with it. I also have stress incontinence which isn’t helped by pelvic floor excecises. This might not be the case for you though. Sorry I can’t help, just wanted you to know that you are not alone xxx
Thanks, I suspect I’m just going to have to put up with it too. I don’t have stress incontinence, but can’t achieve a pelvic floor contraction at all, so pelvic floor exercises are not an option.
I’ve had Botox injected into my bladder and it has stopped all leaks and urgency too. I do self catheterise all the time but I don’t find it a problem. I do it around 5 times a day without any need to get up in the night too which is great!
I’ve had it done twice now and we’ve decided to leave it 9 months before the next time. I was referred to a urologist who looked at my history and that I have MS… Botox was the first thing that was suggested and I’ve never looked back!