Update

Primary progressive MS
1

Hi all

Hope everyone is having a good a day as possible, it is absolutely freezing here in Gloucestershire.

Some of you may recall that my GP done some X-rays and blood tests on me and referred me to a rheumatologist because he said I had inflammatory arthritis.

Today I went for the appointment, and saw a lovely lady, who has explained to me that inflammatory arthritis is one of 3 things, Lupus, Psoriatic arthritis and Rheumatoid arthritis.

She said it won’t be lupus, cos that doesn’t cause joint damage, and I’ve got that, psoriatic arthritis causes a rash, which I don’t have, so she thinks its Rheumatoid arthritis, wants me to take even more medication and see her again in 4 weeks. Meantime more X-rays and blood tests.

So that’s it then, another auto immune to go with my ms, hey ho, on we go.

Pam x

2

Aw bless, it’s crap isn’t it More pills, I’m sure we’ll all start rattling eventually! I had to have bloods taken on my last lot of pills too… it feels never ending sometimes (that’s to represent blowing a raspberry, not pulling a face at you)

Sonia x

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so sorry to hear that Pam has if having ms isn’t enough.

J x

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Hi Sonia

You are right…it is crap, but we have no choice, I am sure once I get my head round it I will feel better, but a few swear words have been flying about at the moment.

Seems never ending, but we are warriors and have to cope.

Take care

Pam x

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5

Thanks Mrs J, that’s exactly what I said when she told me, given time I will get my head round it.

Take care.

Pam x

6

Ever so sorry to hear that, Pam. You swear away! You are a warrior and you won’t let it defeat your spirit.

Love

Kev

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Cheers Kev, hope you are doing ok, and like me, looking forward to the Spring, the bulbs are pushing their heads through, so it can’t be too long.

Pam x

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8

So sorry to hear your news Pam, hope all the extra medication doesn’t disagree with you,

Take care of yourself,

Love Nina x

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9

Thanks Nina for your kind words, fingers crossed (if I decide to take them, that is). She offered medication there and then, but I opted for some info about the tablets to read first and make my decision.

What troubles me it says it can interfere with your immune system, so what does that mean when you already have ms, think I will chat to my GP for some help.

one thing after another at the moment, but we will press on. Hope all is ok with you, take care.

Pam x

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10

Sorry to hear that you are having a hard time.

Michelle and Frazer xx

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Thanks Michelle x

Pam x

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I`m sorry to hear that too Pam. Yeh, MS is more than enough to contend with.

My hubby`s had RA for around 20 years. He injects with enbrel once a week. It is in remission at the mo, but has caused severe pain and inability to do some things.

Hope you dont suffer so much.

pollsx

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13

Thanks Poll for your kind words, means a lot.

Last week when I seen the rheumatologist, she wanted me to start some meds immediately, but I wanted to think about them first, cos theY lower your immune system, and I am worried if that will have a detrimental effect on ms. The ones she said was Planqueil and Methytextrate (sp ?) I go back in a couple of weeks with my decision…hand on heart, I haven’t got a clue what to do.

Jeez life can be hard sometimes.

Hope all is well for you and your family, take care and keep warm.

Pam x