Hi there everyone…I’ve been away a while despite saying I’m sticking around
Have logged in to see what you’re all up to and to say there is NO other forum like this one! Treasure it, it’s truly fab and special.
Update from me (since MS was ruled out and ME was ruled in by Neurologist) is that Rheumatologists are ‘highly suspicious of a connective tissed disorder’ - I spent four days in hospital last week for pain relief and tests during which time I had a skin biopsy, specialist blood tests, chest x-ray, a spine MRI (because of thoracic pain and propriospinal myoclonus) and I still need a heart scan because I apparently have a heart murmur. So, it’s actually looking like Lupus now.
Results will be on 12th March so not too long to wait.
I miss you all! Will read a few posts but if I’ve missed any major gossip please let me know…