Hi everyone, It’s been a little while since I posted and thought I would drop over a quick update to you all. Firstly I hope you are all doing well I’ve been checking in occasionally and checking your posts. So a little bit about where I am now! Well had biopsy results all back and they were all negative so it left my consultant with a bit of head scratching and throwing other conditions into the equation. The ms is still very much on the table but they are concerned as to whether there is something else going on along side ms or anothe condition all together! So next step is that I’ve got another brain MRI scan with gadolinium on 28th November to see if there are any more lesions and more importantly if there are new lesions to see what part of the brain they are in. So still a waiting game but at least they’ve ruled out a few of the nasties! The consultant wanted to check the biopsy sample himself and see of there was inflammation in the tissue sample that they took as he thought that might give him another clue to my puzzle! After the MRI scan I will then see the consultant again, see what the results show and hopefully get some answers. Also thinking about going to see a rheumatologist- have any of you see one? Karina xx
Hi Karina, So glad you’ve updated as I have been looking out for you and have been wondering how you are. I’m really glad that all the nasty things have been ruled out and that you can feel some relief over that. It’s good that they are still striving to find out what is wrong with you. keep us posted! Teresa xx
Hi Teresa, Thanks very much for your post and was nice to hear you’d been looking out for me on here. I’ve been checking in but haven’t posted my own stuff just tried to help others if I see a post that I can help a bit on. How are you doing? Karina xx
I’m doing OK atm thanks Karina. Good luck on the 28th. Let’s hope the MRI gives you some answers. Teresa xx
Phew! re the biopsies Karina. That’s great news 
I can’t offer any advice about a rheumatologist I’m afraid. Fingers crossed this new MRI will move things forward for you. Karen x
Hi Karina, fantastic they have ruled out the ‘nasties’! Very pleased for you hon. You must be so relieved!
Hope all tests go well and they get to the bottom of it very very soon.
Pat x
Thats fantastic news the biopsies are negative - I’m so pleased for you. I’m glad your consultants on the case and trying to get to the bottom of this. Hope you get some answers soon. How are your symptoms at the moment?
Reemz
X
Hi. I’m new to this, so please forgive me I was diagnosed this morning at 8.35! Great start to the day, huh? I had my own suspicions ages ago, but a problem with my vision prompted my visit to neurology. Sort of wish I hadn’t! I am so scared. I suppose that’s normal. My husband had been fab. H couldn’t come with me, but when I told him, he surprised me with his support. How do I tell my aging parents and my siblings? Thank you for listening
Hi reemz, my symptoms are ok not having too bad a time of it at the moment. I had a cold 2 weeks ago that made me feel pretty awful but over it now. Still getting some dizziness intermittently but it’s not too bad. I’m not take any meds now as came off the gabapentin about 6 weeks ago and my nerve pain has been pretty good- I’ve definitely noticed a big difference in things since they started me on my vitamin b12 injections so thankfully they finally took the low levels seriously! Hi karateless- you’re probably best starting your own post as you will get lots more replies that way. I’m diagnosed but its a tentative diagnosis as they have been concerned with what else has been going on with me so are keeping a close eye on me. In terms of how I told people I just kind of came out and said it with no lesson about. I said “basically it’s pretty much looking like ms but I’m still me and I’m alive and that’s the main thing and everything else I will deal with as and when” - everyone’s been really supportive and to be honest because of the whole cancer scare and the possibility of what they thought I had my family and friends are glad that I’m ok. What I will say is that give it time to sink in with you first before telling others as I think it’s a hard enough thing for us to get our heads round before having others trying to understand it. It may hit you in fits and starts at the moment so just take it one day at a time. Big hug for you and if you need to chat or rant or whatever then this is the best place and it has amazingly supportive people and people that understand what you’re going through. Hope that’s of some help for you. Karina x