I was diagnosed last week with relapsing, remitting M.S. after over 2 years in limbo. I have posted before on the old forum about my probable M.S. diagnosis being withdrawn after a negative L.P. result. This was even after a second MRI showed more lesions (peri-ventricular, sub-cortical and in the pons area of my brain stem), plus abnormal evoked potential results and an abnormal neuro exam (brisk reflexes, positive babinski, clonus and nystagmus). My original neuro said that after the negative L.P. it was highly unlikely to be M.S. and I was basically left in limbo to get on with things. He told me that I might never be diagnosed!
After 3 more disabling relapses last year, I eventually managed to get referred to another M.S. specialist for a second opinion in another hospital and after another MRI showed yet more lesions including one in the medulla in my brain stem, I was told without doubt that I have M.S. He was not at all concerned about the negative L.P.
I am now waiting to start D.M.D.'s and have been referred for F.E.S as my new neuro thinks it may help with my walking. I now also have a M.S. nurse and I am starting a course of neuro physio. All of a sudden I am getting lots of support and treatment.
I just wanted to let people in limbo know that it is possible to get a M.S. diagnosis with a negative L.P.
Keep strong everyone in limbo. I hope you all get answers. Limbo is certainly a horrible place to be and I think that only people in the same situation truly understand how it feels.