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Update on my neurologist appointment on Sunday

Hi everyone, I thought I would post an update on my neurologist appointment. He did a few basic tests and is confident I don’t have MS but that I have Myasthenia Gravis as well as my fibromyalgia. He took blood that’s getting specialist testing down in Oxford so I have a couple of weeks wait for those results but he said that if they don’t come back positive the physicals tests he did and my facial features (I have a drooping eyelid and face on one side) were a clear sign of it.

I feel somewhat relief at getting an answer but then it’s another diagnosis to add to the already long list. The fact it’s on top of my fibromyalgia makes it harder but I will be ok.

I just wanted to say a massive thank you to you all for answering my questions and worries over the past few weeks. I wish all of you the best.

I’m glad to know you have an answer from your neurologist. And that’s been relatively quick too.

It is incredibly bad luck to have two separate conditions. You have my sincere sympathy.

But thank you for letting us know the results.

Sue

  • Sorry to hear this like you I have had fibromyalgia for over 8/10 years aswell so I am so full of sympathy for you I have m s as well so am fighting (well mentaly physically) on both fronts…now in wanting to know what came first m s or the fibromyalgia or the m s they didn’t find m s lesions until I had a stroke.so you just keep at neurologist until you het a definitive
  • Answer one way or an other
  • Try not to dwell on if it’s this or that time and m r I will tell one way or another
  • Take care. Rosie