update fron me

Hi

an update for thpse who know mt username

I lost sight in left eys permanentlu in 2013 but in may 20 I had issuts with right (for the 2ns time) which have stayed the same. I am grateful that I have yet aguin fount my way of coping.

Life has chanfed a lot for me. I now live on my own since june 20 as my younest of 4 has steeped inti the world.

I have the continuwd supprt of my carers who have been with me simce 2013

I was a stsff nurse for 12 years then barita for 5 and loved both as I learned so much about human behaviout.

I met many folk in realityu from these boards (some of whom are no longer with us) but I learned so much fron them so am eternallly grateful to them.

Any repl8es from me may be short and garbled but trust they are heartfelt not only basefd on personal ecerience but listening to others. (tavish and sadaya spring immediatelyy to mind)

ellie x

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Hi Ellie,

I remember you so it’s lovely that you’ve posted again. Sorry to hear your eyesight has suffered but glad that you’ve got help and are coping. We all try and find ways round our symptoms. .

Life has changed for everyone with Covid and think everyone is feeling lonely. With your four children flown the nest you’ll need to find something to fill your time. I live alone but am still teaching online so that keeps me out of trouble.

I’ve been told that I’m in phase 6 for vaccination. One level up from my age group. Let’s hope that once we’re vaccinated then life can get a little better and we can meet up with friends again.

Take care

Jen

Woo Ellie

Well done you. I’m furloughed as your typist now then?! (I’m glad - not that I minded and am happy to be re-employed should you need it!)

You are flipping amazing. You’ve overcome so many challenges in life. MS stinks!

I’m truly blessed to count myself amongst your friends.

Love Sue xx

Hi Ellie,

great to hear from you. Your eyesight issues sound like a horrible pain in the butt. What an amazing achievement to have & raise kids to the point when they can make their own way. I am in awe of all parents (with or without health issues)

All the best

Mick

hi ellie

it makes my day to see your name here, because I admire your resilience so very much.

keep it up!

carole xx

val

i have 4 granddayghters now!

el x

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Great to hear from you, Ellie - so nice to see the once-familiar ‘chocorange’ name pop up again. You used to be called something else before that, didn’t you? When we were all much younger!

I am sorry that your eyes have been so bady affected and that your MS makes life so difficult for you. It is so good to have you back, with your wise words and good example of making the most of life.

Alison

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hi jen

i am not lonwly-far from it-some days theres not enouygh hours in the day! my best time of day is 11-3 ish. outwith then its variable what happens.

covid has not affetes my life too much, the eyesight and bowel has dramayically. i have an a4 size magnifying class which does make words larfer but its still like looking through thick glass with one eye (theres onkly been light and dark in the other for 8/9 years)

i was hnever a good typist. prevoously a child was here to to help get the spellinfg right (i do know the bascics re grammar) and used to want to get it right. as time goes on freiends and family say the important thing is contact woith me i realise they are right. some just call me and say-not a f’ing clue what uyo mean so te;ll me!

humour is not everybodys way of cpoing i know but def gets me theu most days. thats not to say the illnrss/disease/ms ifs funny cos it is def not. we are all unique just like efvery body else!

el x

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xxx

mick

i have encourged them all to live their life to the fullest so i cant moan when they do exactlt that!

ta carole

you wouldny believe me if i told you all thatd happened in past year! i woulndt believe somrone else telling me such a tale!

i know exactly who/what i am but always listen/read othwers experiences just in case they have hints that may make my life easier.

el x

alison

theres been lopads of changes-eyesight and bowel changes the throat if i had pick am order! but when i list all the things in my head i do wonder why i get up some days!

(the ansewr is because the candays outweigh the cant ones for now)

el x

Hello my darlin!

I love to see you back again. I keep bouncing back from bad stuff too…we have all that in common here, dont we?

Keep the faith chick.

Boudsxx