Hello everyone. I am back after quite a long time of not being on this site. How is everybody. I for one have been struggling somewhat during this year, mostly with loneliness and isolation due to Covid. I don’t have many close friends and those i have have been busy with their own issues.
However, I didn’t come on here to be maudlin. Just thought I would check in and see how everyone was.
Hellooo
You are not a lone, welcome back and how refreshing not to be maudlin Every where I look everyone is saying how hellish MS is, we bloody well know that but there’s a darn sight more people just getting on with life. I actually think we should try not frighten any newbies. Take care folks, be safe Mx
hi
Covid has impacted my life as much as MS.
However all of us MSers are used to coping so it is now multi-coping!
Liza - we will get through all this covid palarva. (my ability to spell has deserted me).
Take heart and take care
Carole x
Hi Liza
I’m Suedolittle. We’ve not ‘met’ before. But I like your user name. I don’t do much of anything. To be honest, Covid (the utter git) hasn’t changed my life immensely. I didn’t do much before it either.
But, what it has done is make me do video calls with my friends. My OH & I do Zoom calls with our friends in Edinburgh every Friday evening. We have pre dinner gin 'n tonic and nibbles of choice. Eventually our husbands go and make dinner (generally finish making dinner, although her husband is a bit more adventurous than mine who needs guidance and instructions) while my best friend in all the world sit and chat for 15 or so minutes. Neither of us liked video calls before but we’ve got used to them. Another friend from West Yorkshire always does Facetime calls. We’d normally have seen both at some time this year, but Covid has snatched that from us. Video calls make up some of the ‘missing friends’ problems.
Not that I have a lot of I suppose ‘real life’ friends. A few people from here have become proper friends without ever meeting. So I’m never lonely.
Sue
wow what a lot of people haunt this forum when we should all still be asleep!
Insomniacs R Us!
That’s a very arrogant comment you made there.This is an MS forum and there are people having a very bad time that come on here because its the only place they can come to.Think yourself lucky you CAN get on with life because there might come a time where you can’t.Comments like yours make people who are bad with there MS feel as if its there fault.Just try to realise not everyone is the same as you.
Can’t understand why someone’s good news and positivity should make you feel worse. Even if you’re feeling down and struggling to cope with your ms, you don’t have to pull everyone down with you.
Hello Liza and welcome to the forum. We are a friendly bunch who do our best to support each other.
Our wonderful Crazy Chick and me have something in common in the way we dealt with having MS. Her`s was BP and a stressful job and for me it was the better alternative out of 2, as the other one meant devastation for my family.
We all cope with our MS in a number of ways. Hope we can help you too.
Boudsx
Hey anonymous #1
There’s no need for that sort of personal attack. Crazy Chick has had her own share of troubles, with MS and with life generally. It wasn’t too long ago that she lost the love of her life. So the fact that she can still manage to a) laugh and have a life, and b) try to find some positives out of her long standing and disabling MS is proof of her bravery and good nature.
I think we are all aware that this is an MS forum. There are times when many of us see only the negatives. But being able to share some small benefits from MS is worthy of praise, not accusations. Nobody ever suggested that having bad symptoms or bad times generally is the fault of the individual.
I’m not a Pollyanna type person, always seeing the bright side, or looking for the positives. There are times when we all need to shout and complain. MS is horrible. It has done dreadful things to my life and there are days when all I want to do is complain about that.
But accusing someone of arrogance simply because she can see a benefit caused by her having MS is really a bit OTT.
Sue
I was not answering to crazy chic. I was answering to someone else that’s now removed the post.Maybe because she realised how arrogant it sounded.
Ok. Apologies.
S
So this morning I am sat at my computer waiting for the rest of the company to wake up. I am pleased to be able to still work full time although I have good days and bad days. My company are really good about my MS and my line manager is very understanding. I definitely feel for those who can’t work due to their MS.
What is everybody else up to today?
Liza,
good to hear that your company and line manager are supportive. When I was working, my company and management were great, but there were other managers who were not so good and assumed I was a malingering chancer. I think there is a huge dose of luck involved with having the “right” managers.
I have an exciting day today, having moved home in June 2019 and been diagnosed in 1991, today I have a “first appointment after diagnosis” with my new MS nurse team. I have been exchanging messages with them and they sound OK but I am looking forward to meeting in person and hope they can help me a bit.
Who would have thought that the social interaction of a hospital appointment with real people will be the highlight of this month!
Mick