Hiya all,
Just had a phone call from the QE in Brum about taking part in the trial for Tysabri and if it helps people with SPMS. Don’t know how i feel a little excited, a little apprehensive…but overall very lucky
I have gone Anon as i don’t really know if i am allowed to broadcast the fact that i have been asked, Don’t worry i will tell you who i am when i no its ok
Anon
So much for going ANON…This site is amazing at times
I go to the QE for tysabri - I’m RRMS though - I have been on it for just over a year now, they are a great team of people in the infusion ward.
Hope the tysabri works for you
Cheers Floopy,
I am under Dr Mazibrada at the QE at the moment and think he is great as are all the nurses. This is a double blind trial so neither me or the consultant will no till the end if i was given the Tysabri or a Placebo !
Mind you i am SPMS so nothing to lose really
John
Hi John,
You are one of the lucky once,if i remember right 850 people in 15 countries,maths never my stong subject ,about 57 people per countries.
I hope it works,for the people behind me,but it is still about 7-10 years before it gets the go ahead.
How long is the trial for?
Wish you well.
Chris.
You were anon - you only see your name if you’re the poster.
Greg [admin]