Hello All, I have had MS for 20 plus years and pain has always been a major problem. A few years back I was told that the "progressive " form I had from the beginning was now "secondary progressive " and as well as pain I now have to use a power wheelchair and self catherterize. I am now at a point where the pain is stopping me sleeping and am using a bottle of Oramorph pretty much every day. As the heading implies I have tried just about everything from Mindfulness and residential pain programmes to Fentanyl patches. At present I think the flair up is caused by stress as I have been told I “may have cancer” and just for good measure I have just had my driving licence revoked (I am appealing this decision) and I am starting a PIP application. I think, in truth there is little I can do to reduce the stress at present. As a result of all of this I have decided not to have a Prostrate biopsy and just let any cancer i might have take its course (I haven’t told the Urologist this!). My GP is excellent and very supportive, but, I have not seen a Neurologist for over 6 years as all they were doing was giving me yet another drug that never worked but always had really awful side effects. Has anyone got any tips (or tricks) that I could consider? I am willing to try anything legal, infact, anything that is not legal I would perhaps consider!
I have just realised how long this message is, so really sorry to have taken so much of your time .
Thanks for reading this “essay”