these are the meds i have tried iv steroids, carbamazepine, gabapentin, pregablin, amitriptyline, duloxtine, baclofen, morphine, morphine patches, tramadol, oxycodone and naloxone, palexia etc these are the ones i can remember
Hi Sherrie, oh darlin’ you really have tried the lot haven’t you… and SO young to have PPMS.
Many hospitals have what are called ‘pain management clinics’. You will need a referal from either your GP or your neuro.
These clinics have doctors who specialise in pain and how to manage it. They work on several levels… drugs yes, but they know more about how combination of drugs might help… or a different dosage. They also work with you to deal with the pain on an emotional and psychological level.
Many years ago I had a good friend who had AIDS and was in terrible pain. GP and consultant had tried everything. Eventually he got referred to a pain management clinic and before long things were MUCH BETTER for him.
Ask your GP or neuro to refer you.
I’m so sorry you are going through this hon. There is nothing on the earth worse than living with chronic pain.
No hon. Don’t give up. You know what MS is like, because you have so much pain now doesn’t mean it will always be like that… and in meantime pain management clinic might be just what is needed.
Hi Sherrie Just wanted to let you know that I am thinking of and am so sorry that you are suffering so much. Pat’s advice appears sound and hopefully someone at the pain clinic will help you. Teresa xx
My experience of ldn has been nothing but positive and the site Pat suggests is well worth checking out. Some people claim it helps with pain, but this is far from guaranteed.