Hi, I seem to be getting more trembly and shaky. I can’t pick up a pen or mug without trembling I went to the doctors and said about it and the increased weakness. He suggested physio and asked if I wanted to see the neuro. I said I’d see how I go. Should I ask to be referred ? Thanks Lynn

I would probably asked to be referred as there may be a waiting list. If you find (hopefully) things improve you may not need to see neurologist by the time the appointment arrives and you can always cancel straight away. Good luck. Hope your symptoms improve

Thanks, I hate going to the drs and going to the neuro but I really don’t want to get worse.

Do you have an m.s nurse you could speak to for her advice? They maybe able to offer another solution?

No ms nurse in my area unfortunately. I tend to ask all my questions on here and I really appreciate the replies and advice you give me

Hi Tonka!

As you suffer from MS, it sounds very much like you’re experiencing Secondary Dystonia. It’s a neurological condition that can cause the symptoms you are describing. Unfortunately, Secondary Dystonia is my overriding MS symptom and I’m pretty clued up on it now.

As it is a neurological condition, it is somewhat uncommon and whilst it irks me that your GP sounds rather clueless, it doesn’t surprise me.

The good news is that there are some very effective treatments available. Thankfully, I don’t need to take anything for the symptoms now, because the symptoms are far milder than they were. At its worst, I found Tizanidine to be very good, although Baclofen is also used (there are also other medications/ treatments).

The following NHS website is very informative and was recommended to me by my MS Nurse. It will provide you with all the information you need. Maybe you could encourage your GP to check it out too?

Anyway, I hope things improve for you soon.

Good luck