Hi everyone, hope you are having a good day…we have had some sunshine here which is always a delight so hope the rest of you are having a rest from the rain today.
Two new symptoms that I seem to get when I am fatigued, one is tingling tongue…and yet its kind of numb. It starts on the tip and works it’s way to about the half way point and then goes away after half an hour or so.
The other one starts with my right pinkie finger with pins and needles/numbness and carries on to my middle finger and if I take either symptom as a cue to stop and lie down or rest goes away within the hour.
I tried to search this subject but got no hits. I don’t really want to up my meds as I am struggling a little with alertness and fatigue.
Is it common to experience new symptoms in association with fatigue?
I want to be as active as I can and yet I am finding the “plan one thing a day” rule seems to be the golden rule at the moment.
Hello Gillian, A tingling tongue was one of my initial symptoms before my diagnosis, but it was intense and constant for a few weeks. I can’t say I’ve noticed it when I’m fatigued, but it does reappear during a relapse or when I’m run down. I also get pins and needles in my fingers, but mine is my thumb and finger, this can come on when I’m fatigued though. My MS nurse said you must listen to your body and sometimes you need to slow down, this doesn’t mean you are giving in, you are just allowing yourself time to adjust. Take it easy. Taz
I have a tingling tongue,throbbing gums and pins and needles in my face constantly.
I wonder if the tingling tongue is just how our insides interpret pins and needles,because random tingling inside legs etc also occurs.
I have had it for so long now I think it will be a real shock if it goes. I doubt mine ever will now though as I have been relapse free since May.
As you have spotted yours a being a gentler one of the MonSters warnings I guess you really must listen or he may throw something much more direct at you.
I have read your posts about not being too good at the moment anyway so one a day where possible sounds even better.Try to fight it and you know who will win. You will turn the corner soon I hope.
I am run down right now by a UTI. Think it had been lurking a while as since taking treatment am realising that I am no long quite so urgently seeking a loo.
I also think you’re right Pip about the “pins and needles” (it is such an understatement - its like electrified pins and needles)
feeling like tingling in your tongue.
I “think” I have been relapse free since around 1st August but I am still trying to recover mobility, so I am listening really carefully as I suspect that I may be prone to a relapse/peseudo with carrying the UTi…and frankly I do not want to go backwards again.
I’m still undiagnosed so it’s difficult to not get frustrated with all these new restrictions but I really want to be careful. Fear is too big a word but if I can stay out that relapse “tunnel” I will.
Luckily I am still off sick, though getting sod all sick pay, hubby very supportive and is laughing about the fact that I have failed to clean the kitchen floor every single day this week… he did ask very nicely for some clean pants this morning
This site is such a godsend, I don’t want to keep carping on about illness every flamin day as he comes in from work…not when I can share with you guys who are so supportive and understand
still not diagnosed here so not officially an ms sufferer yet, but i get tingly tounge and lips and pins and needles in my hands too mine have been constant from July but when they first started i was incredibly worn out and tired…6 month old baby teething! so yes they can be a sign and i think mine still get worse when really tired. i think the listening to your body is important
i dont have tingling-its numb in right side of my mouth. has been since june. on the plus side i have lost a stone and half cos cant taste properly! am forcing myself to eat cos know that i have to but eating is a social and enjoyable thing to do-not currently
no idea how long it will take to recover-if it ever does-am hoping it recitfies soon/sometime.
Oh Eliie I know what you mean (sort of) I choke really easily so I find I can’t drink wine before/during a meal and I can’t eat lots of things cos it makes it easier to choke…so basically friday night tradition of bottle of wine and curry and rice is currently off limits.
I go to see a swallowing specialist this week to watch me eating…gosh the things I do to fill my days
I could really do with losing some podge but I know what you mean - hope it goes aways Ellie.