The plot thickens..

Everyday living
1

Further to my last couple of posts where I whinge too much about new and unexplained ailments…the plot thickens!! GP had ordered a load more bloods.

Creatinine came back too high, Vitamin D too low.

GP has referred me to rheumatology anyway after I pushed for it because…the last few times I’ve been to the dentist he has commented that I have a dry mouth and very little saliva, which is true and has been for years.

Not thought much of this until went to opticians, who said I have very dry eyeballs.

So those 2 things, plus intolerance to bright light, rashes in the sun and the all over joint pain are maybe Sjorgrens?

Or maybe low Vit D. Or maybe high Creatinine. Creatinine is loss of muscle mass related which would explain some of my pain. Low Vit D can be caused by malabsorption “especially in those who have had a bowel resection” which I have. Or maybe I have a kidney issue, also Creatinine, which affects Vit D?

Or doc says maybe osteoarthritis. She says can’t be RA as no markers in bloods. But hubby has no markers in bloods and has chronic Psioratic Arthritis!

I say all this tongue in cheek as am feeling like one of those escape game puzzles where unlocking one clue leads to another.

What is particularly annoying is that I can’t get a GP to actually SEE me! And have had 3 telephone appts to get this far - and each time I have to remind her why, what for and that for the 10000000th time no it’s not all MS related…

Anyhow, looking on the bright side, wouldn’t it be fabulous if everything was Vit D related and sorts itself out with the supplements I’m now on!!

Minnie x

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Vitimin D is a highly UNDERATED supplement, its only since covid that medics are now actually taking a low count seriously. It is a known fact that vitimin D defiency can affect many things, and i belive it has always been recommend that MSERS take this supplement.

so many people in the uk are deficient with it. I am on a supplement and my levels are normal now. I also drink Koko milk everyday which is fortified with D and B12.

the first few symptoms are.

Signs and symptoms might include:

  • Fatigue.
  • Bone pain.
  • Muscle weakness, muscle aches, or muscle cramps.
  • Mood changes, like depression.

Just like MS isnt it?

having MS can be a pre cursor to other auto immune diseases. My first ever blood test on my journey showed LUPUS. the second test six weeks later it was negative so lupus came off the table even though my father had it. over the years i have had markers but ignored. some of these diseases are very hard to diagnose as they have false negatives.

everyone i feel should be tested for their vitamin D levels. its such a cheap supplement but should never be taken too much of.

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Hi CrazyChick…yep I have all of those and also keep getting the butterfly rash on my face but GP says no possibility of Lupus as ANA test negative!

Glad your levels are up to where they should be - hopefully you feel a little better because of it?

Minnie x