So I have RR MS was diagnosed about 9 years ago and I’ve been a bit up and down. I’ve ended up using a stick for the past few years to assist my walking. Well I’ve been focussing on trying to improve it for a while and I can now walk stick free for about a mile. A recent trip to the states where paths and floor are all even I managed to increase to 2 miles so I’ve been ecstatic to say the least. Landed from the states Sunday and have felt hit rough put down to travel fatigue but I’ve just tested positive for covid. I can barely walk and my balance has become non existent. Has anyone else had covid? How has anyone recovered or managed it?
Just tested positive for Covid-19 tonight; had the high temperature and just crumpled to the floor because of my heat intolerance.
I logged it on gov.uk website and phoned 111 so hopefully they can sort me out with Paxlovid anti-viral, like last year.
Take care all, the virus is definitely back this Autumn.
JP
Are you on DMTs and if so which ones? Curious as about to start this journey and the lack of info around covid is scary. Neuro has given the most politician style answer.
General Covid 19 information. Covid-19 vaccines and boosters for people with MS | MS Trust
I have tested positive positive for Covid twice since I’ve been diagnosed with MS, both times it exacerbated my fatigue and i got bad headaches but definitely lucky it wasn’t worse, while i had it I conserved energy as much as i could, was really only out of bed for the bathroom until i started feeling better and made a full recovery both times.
Get plenty of rest and look after yourself, hoping you feel better soon!
Try not to let it hurt your confidence with your walking progress because you’re already doing amazingly! Get the rest you need and hopefully you’ll be back to normal ASAP!
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Hi Tyler. Yes, I had Covid a couple of years ago. In my case I think I received an unusually heavy and repeated initial infection over 3 days as a result from being in the company of someone ( in a minibus) who had a cough so it’s possible that my experience was a little unusual.
I too lost the ability to walk and at one point had to sort of crawl and drag myself to the bathroom and back into bed. Things did get better but it took a long time. I think I was able to walk within a week or so but it took perhaps a year before I stopped feeling so tired and didn’t need to have daily rests and sleeps .
I got Paxlovid ( which was delivered very quickly) which I assume lessened the impact. Covid itself wasn’t much fun - like a strange and bad flu - but having no energy for the best part of a year was just as wearisome.
I hope that you recover well - but don’t be too concerned if it takes a while to recuperate fully
Since then, I’ve been ultra careful about going to crowded places etc.
Thanks for the replies. Some symptoms have died down a bit so that’s good. I don’t take any MS treatment been taking sinus relief as that seems to be quite painful at the moment. I needed some air today and managed a little walk so pretty pleased with myself. Hopefully this is it clearing up. I can’t smell or taste anything which is weird but happy if this is as bad as it’s going to get. Fingers crossed