I chased up my Visual Evoked Potentials results today and the neuro secretary informed me that they’d sent a letter, then kindly offered to read it to me down the phone.
The head neuro says that the test was clear and that my symptoms are functional in nature (or words to that effect.)
So, after two neuro examinations, clear blood tests and clear VEP, I have come out with a diagnosis of Functional Neurological Disorder.
I have mixed feelings. My strong intuition about MS has been effectively disproved. Can I trust my intuition at all? It is something very important to me. I’m glad of course that there are no signs of damaged myelin but I am still dealing with cog-fog, poor memory, vision changes, numbness, tingling, involuntary movements, bladder and bowel issues, sharp brief pains, walking difficulties and fatigue.
The only medication I’ve been offered is duloxetine and I haven’t been very reassured by what I’ve heard about it. I was very glad to be able to do the CFS/ME group therapy and have been given ways to improve things, bit by bit…but it may take quite some time with no guarantees of a full recovery.
So, rather sadly, I feel that I need to step away from this board gradually. I’ll read replies but won’t start new threads (poke me if I do). You’ve all given me such wonderful support and advice over this past two years, so thankyou, from the depths of my heart