Is my neurologist assured me today that I do not have MS 100% confident in that yipppeeee but as all other tests were normal he said it’s probably small fibre neuropathy and there is nothing they can for that other than try to manage the symptoms, see you in 3 months. Now he gave me no info on this disease and when I pressed for an idea of progression he simply said he doesn’t know. So I come home on the one hand happy on the other a bit lost in the dark, hit dreaded google as I would like to know more about it, I am a nurse so I looked at research papers rather than some less reliable sources only to discover that some of the things he picked up in his examination months ago are not caused by small fibre neuropathy namely lack of joint position sense and vibration sense and brisk reflexes. He didn’t exam me today at all, he was going to see me in 6-12 months and when I questioned what I should do if the medication wasn’t effective or if symptoms continued to deteriate what should I do, he changed and said 3 months. He has no idea what the underlying cause is either, so I went from yippee no ms too god this sounds crap too and no support at all so feeling a bit low and lost I guess this will be goodbye too, I need a new forum to get some support. Thanks to everyone for their words of wisdom and good luck with everything pre and post diagnosis x
Hi. Thats good about the ms. I too had a definitive not ms result today, which to be fair i had worked out myself. Its good you have a review period. I just got told it was fnd and when i asked what i do if symptoms progess as they are at the moment was told " be rest assured that this is not permanent and that i might well get worse before better but that he expects it to stop about a years time". try explaining that to my work! Good luck with your recovery and hopefully you will find the right support x
Snap. I got told he didnt think it was ms and have the official term of non specific encephalopathy?!?. Can’t find much out about it and have been offered no support at all. Said can’t tell whether I’ll get better, worse or have it all my life. I was the same as you where I was thank god it’s not ms but now I’m like what now?!?.
Hi guys Do you mind me asking what symptoms you have? I’m in the same boat as you. Susu x
Fatigue in arms, burning pain in hands and feet, pain on walking or standing loss of vibration sense in toes, loss of limb position sense in feet, balance problems especially in the dark or with eyes closed, random numb patches and areas of highly sensitive sunburnt like feelings. Tingling in left side of face. Fatigue Think that about covers it X Done some reading and it can effect heart, breathing blood pressure not a great diagnosis to have 
The good news is there are many physiotherapy solutions to a frozen shoulder and relief can be obtained quickly once treatment begins. With treatment, pain will decrease and the ability to move the joint will slowly return.