Hi Guys,
Just wondering how long people have to wait from diagnosis to treatment? I’ve been over 3 weeks since diagnosis but haven’t heard from tecfidera people. However the tecfidera support line called to see how I was getting on with it? have i fallen through the net? I don’t know how to find out? Elp!
hi ceetee
did you tell the person from the support line that you still haven’t received your tecfidera?
it does take a few weeks, because the delivery people need to be informed.
then the drug has to be available for them to collect.
you should hear something soon, if not ring your ms nurse.
carole x
I was diagnosed on the 1st August,i was sent an appointment for my ms nurse who i saw today,i start Tecfidera in two weeks,e-mail your ms nurse and find out what’s happening
Ms nurse? I don’t have one of those either! Oh no I’m not doing so well so far.
Hospital where you were diagnosed must have a ms nurse,do a search,if not you’ll find one in a nearby hospital
I got a leaflet with contact details on for an ms nurse in the event of a relapse. I’ll phone them
tomorrow, I’m waiting for them to contact me I must have my wires crossed. Thanks for the advice