Taopatch - Anyone tried?

Just a thought, but why dont MS consultants or spasticity consultants recommend this if they are so good ?
My MS consultant , physio , MS nurse and spasticity consultant all said dont waste my precious time and money.

I’m not saying it work , I’m just saying what they said.
Surely if there was any documented & proven trials the medical people would be the first to point MS’ers in that direction.
My MS consultant and his team are very very proactive in trying new things to help with my MS, i’m on 2 trial drugs right now, I’m seen every 3 months for assessments, but each time I mention Taopatch I’m just told the same thing each time, waste of time & money.

Another point I’d like to make is the placebo effect, it’s a real proven thing, hence trials that use placebos.
If it wasn’t for using placebos during trials there would be no confirmed results.

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You decide who you want to listen to. Big Pharma or to try something new at NO COST to yourself with a full refund after 90 days if you are not happy.

By the way, we know NOTHING about MS. Not where it comes from, what it is, what makes it worse or better etc. How can you design a drug to improve it? It affects EVERYONE different?

Did you ever ask your specialist to tell you how you felt before the MRI? How you will feel next week? Or how you felt at the moment of MRI? He can’t tell you!

There are more than 3000 Practitioners in Italy promoting Taopatch and more than 350,000 very happy users.

Be well🤔

Haha that made me laugh - your consultant/neurologist is only interested in things that have clinical studies funded by pharma companies and therefore will never advise on anything that stops us using drugs. Prime example when I asked my ms nurse recently why they hadn’t told me about oxygen therapy - her answer well there isn’t enough clinical evidence - really well that’s because no one is going to fund studies that won’t make them profit but if they really cared about their patients they would give us all options. Instead we have to find out about these things on our own. My neurologist provides nothing that has helped me yet things like taopatch, high vitamin d, oxygen, diet, exercise have all made a positive different to me.

@funkygeorge76 .
First thing for you George is to read what I said, and more important understand what I didn’t say !!
Such as, I did not say that my consultant only offers treatments with clinical trials funded by pharma companies.
My consultant and MS nurse both recommended Oxygen therapy.
In fact both my sister and cousin who also have MS have regular sessions at out local Oxygen therapy centre.
Its not cure and that was clearly pointed out by our consultant it just helps a bit with MS fatigue.

If it was not for our MS clinic recommending Oxygen therapy we would be none the wiser.

As for high doses of Vit D he also recommended that on the very first day of my diagnosis, also a “Mediterranean type diet” along with exercise.
Again certainly not cures for MS but just a healthier life style, which would apply to anyone, with or without MS, so I’m not really seeing your point when you say your consultant/ms nurse didnt recommend these things ?
Maybe from what you’re saying it’s your consultant/ms nurse/clinic that you need to change, due to them not really offering the most obvious basic advice ?

@berkeleyadrian .
It’s due to research and trials that we know more about MS now than we did even 15 years ago,
My sister has had it for around 27 years, when there was next to nothing on offer in regards to treatments.
My cousin has had it for about 15 years and without her meds is basically house bound, yet with her meds she’s a completely different person, to the point where you might question her disability, but unfortunately those same meds might not help another person to the same level, because as you say we are all different, so in the space of those 10 years the medication has come a long way.

So I totally disagree when you say we know NOTHING about MS, we know more now than we ever have !!

You also mention:
What it is ?
It’s a neurological condition where your immune system attacks your nervous system, so there we are, you now know what it is, surely though that has been explained to you at your clinic ??

What makes it worse or better ?
Heat, over doing things, infection, stress, gradual progression of damaged nerves.
Surely you know what makes your MS worse ?
Again wasn’t this explained, and if not, just trawling through this forum for a few minutes and you’ll see a definite trend in what makes MS worse.
Its most likely some of the things I’ve just mentioned or possibly something else, but you’ll know what this is, wont you ?
If we know NOTHING about MS, how do you know you have MS ?
Someone must of diagnosed your MS, and you clearly accepted that diagnosis otherwise you wouldn’t be here pushing the Taopatch to treat the symptoms of MS !

What makes it better ?
Try avoiding any of the above, stay healthy and as fit as possible, take you meds that help with your symptoms, OR use your Taopatch if thats your preferred choice.

How can drugs improve it ?
Currently they cant completely, but what they can do is help with the symptoms, slow down progression ect.
Research & trials are helping to find something that might one day stop it progressing or even a cure, but without these trials and the research we just will not know.

So we do know what it is and how effects people.
Why exactly only certain people get it, yes it’s not clear, but we certainly know what it is and its dreadful effects.

Again I would be questioning if my consultant was doing his job if I didn’t know the basic answers to this sh*tty disease.

So on that note, perhaps a quick hypothetical simple question to you both, just for fun
Tomorrow your consultant rings you up jumping through hoops, offering a new drug, which research has found that it not only stops progression but also reverses the damage, and the long trials that people with MS have been on has shown theres no adverse effects with this drug, so do you say, nah its not for me I prefer my Taopatch, which incidentally is not a cure either, or do you say thank you very much, and when can I start the treatment, and ditch the Taopatch ?

No need for a drawn out answer, a simple “yes I’ll take the drugs” or “no stick your drugs cos I dont agree with Big Pharmas principles and I’m a massive fan of the Taopatch”.

Personally it would be a no brainer for me, I know exactly what I would be kicking into touch, (if I could kick) :roll_eyes:

The reason for asking is that, from reading some of your comments, it reads as though you’re not only recommending Taopatch, which is fine, but you also seem to be saying that you would not accept a medication that would help with or even possibly cure your MS either now or in the future because of the Big Pharma and your consultants attitudes towards other alternative options such as the Taopatch ?
Maybe I’m reading your comments wrong, and if so I apologise, but surely you wouldn’t turn down a possible cure or even a big improvement on your condition purely because of negative attitudes towards alternatives treatment such as the Taopatch ?

For the record I’m certainly not saying Taopatch is nonsense, but my point is, dont dismiss the drugs that can and do help, but also if you feel you know NOTHING about your MS then surely the first place to start is to get another consultant or MS nurse/clinic !

PS.
I dont come on here much these days, so bare with me if you’re waiting for a reply.

Be safe & live well .
:+1:

Hi just came across the taeo patch post. Are you still using them and are the still helping?