Mine is like that! I don’t feel very comfortable going to her for help or advice as I don’t feel she takes me seriously. Fortunately there are two but she is the junior one so it’s always her that calls you back when you phone the helpline. I have found that with her I have to be my own advocate, whereas with the other one I can just relax as I trust him far more.
Last year I had a new symptom and she still said it was “not a relapse, just a flare up”. A flare up of what, I asked? I’d never had symptoms in my feet before. I even looked up the definition of relapse, which does indeed include ANY new symptoms, regardless of whether your MS nurse thinks they are trivial… gah. She makes you feel like you’re a hypochondriac.
And when I quit Avonex due to mental health side effects and the fact that it wasn’t working and the fact that my neurologist had written to me saying I needed to change meds - all sound reasons, I thought - I spoke to her and she just told me I should carry on taking it until my next neuro appointment which was ages away. It felt like she was spouting advice from a book and not actually listening at all. I ignored her and the neuro agreed with me, but it leaves you feeling like you can’t rely on the advice from your own MS nurse which makes you feel a bit unsupported
And AND when the neuro asked her to organise a JC test for Tysabri (emailed while I was talking to him, so I know he didn’t forget himself!), she didn’t bother - so that was strike three…
She’s nice and all, and I know she is probably overworked etc, so I feel bad having a whinge - but you also need someone you can really trust, who pays attention to you as the patient, right?
Sorry you triggered a bit of a rant there!