Weird days for me. Yesterday I went out with my husband into town to post stuff and general errands. I’ve not been right with my walking since the other week when a relapse made my walking a lot harder than it normally is. Well, on my slow ‘walk’ back to the car, my head had this strange sensation and all of a sudden I feel like I’m walking in treacle, then my legs stopped altogether. It felt as though my legs weren’t attached. I’m stood there and I nearly just burst into tears! Finally managed to drag my legs back to the car. Since that I’m falling asleep all the time. Today I’ve been asleep already, and I can feel another nap coming on. I just feel like I’ve run a marathon. Hubby doesn’t want to face facts that I need a wheelchair for times like this. He said it’s too final. In the meantime I’m stuck in. X
Hi Bev, I am sorry to hear how your legs re mis-behaving. I know how that feels.
My symptoms began 16 years ago…foot drop was the main problem and I had many, many falls.
It was only a year after onset that i needed a wheelchair part time.
Now, my hubby was loth to believe my fatigue and falls were worthy of a wheelchair. I borrowed one from the Red Cross when we were on holiday…but the wall between us on the subject, meant the wheelie never came out of my car boot!
Eventually our daugher TOLD hubby I needed a chair, after she saw my problems.
So I bought my first powerchair and since then, my mobility has worsened and now i have none and have been a full time wheelie for over 10 years.
Your hubby is obviously terrified to see you this way. he will have to open his eyes to what is staring him in the face, BEFORE you have a bad fall hun.
Sorry if this sounds harsh, but as all this is familiar to me, I empathise with you.
Finally, having my chair(s) gives me back some of the life I used to have.
ie have wheels will go places!
luv Pollx
My hubby has been the other way, use whatever it takes. It is me that struggles with the thought of having to rely on some mechanical aid. I have brought a mobility scoooter sold it and I have a wheelchair that I never use. I regret selling the mobility scooter and the wheelchair needs replacing as it is too big. Honestly, the advantages outweigh the finality of being stuck in doors otherwise. If you don’t use something you will find that like me that your will go out less and less because it is not worth the pain. Perhaps you could talk through some options, look at ideas together. There are some great wheelchairs out there mine is purple but as I say sadly too big. You could always pimp it up.
Lou x
Hi Lou, sounds like you might`ve made the same mistakes as me…choosing your own mobility aids. I bought quite a few chairs and one scooter. I made mistakes with the chairs and harmed myself.
I would advise going to wheelchair services as they know what they`re talking about!
luv Pollx
Yes… the only thing I have been measured for correctly is a walking stick on the NHS… UGLY. Lou x
Yes, the NHS sticks are not great to look at. Mine have palm rests on them, which are quite comfy but they’re no good if my legs are really bad. I’m finding that the further I walk,or try, the worse they get. It feels like I get a short circuit in my head and they slow and stop. Totally stop. Then I can’t seem to move them. It happened to me the other day in town and I nearly burst into tears. They felt like phantom limbs! Joy :s