Hi everyone hope today is a good day for you?
i won’t make this too long a post for my first post but thought I would share and say hello.
I have been having some symptoms for about 18 months where I have had constant migraines, tremors on and off in my hands and like a jerking movement in my hands and legs. I also had like a vibration feeling in my body like just my torso when I lie down and constant twitching. From time to time maybe every month or so I have spells when I have twitching in my face in my eye, cheek and lips just ok the one side. I suffer with a weakness in one of my arms and a lot of sciatic type pain in my back and leg I also have the most amazing feeling of tiredness again some days I’m fine others I am achy sore and I am exhausted. Even now and again I get a stabbing pain in my eye. . My health prior to this other than regular virus type infections was fantastic but this is a constant every day or month to month thing now. Individually I would think nothing of it and also if they came once then left again I would think it was nothing.
i was referred to neurological consultant about a year ago who ordered a regular mri without contrast because of the migraines. - the consultant did not ask me any questions about any other symptoms I was concerned about nor did I have time to ask as I was in and out in minutes. He told me he would send my gp a list of medications to try until I found one to keep the migraines under control of which I have now found.
I am now if this position where I decided to go back to the GP and say I was still concerned - waited a good 6 months or so and they have referred me back to the neurologist but I’m in this limbo where I don’t know what to think or where to turn.
Well I figured I could come chat to you all as you seem super knowledgeable and helpful and above all supportive! Look forward to hearing some thoughts.