Hi there, sorry to bother with my woes but really could do with some advice. I have been having strange symptoms for the past few years and i was convinced they where ms symptoms. I just got the results of my mri and they showed no suspicious lesions in my brain or spinal cord. What i need to know is should I just be grateful of the results and just move on or should I pursue it further for more answers, here are some of my symtoms:
*constant twitching muscles everywhere around body
*tngling like theres an electrical current running through the body
- arms and legs tiring easily from activity
*bowel and bladder problems
*pain (travelling around not in any specific place)
*eye pain ( right eye only)
*anf finally! Just abs excausted all the time
Sorry to go on and on but what I really need to know is would there be active lesions with these symptoms? Thank you for takin the time to read this x
Hi, a difficult one to answer.even neuros get stumped with clear mris and are sometimes slow to dignose if they are unsure. It is possible no active lesions show, yet symptoms stil occur.
Have you go a follow up appointmen with your neuro?
As you obviously still have lots of neuro-type problems, I think you should be seen again.
It can sometimes take years to be diagnosed with anything I`m afraid.
luv POLLx
Hi Poll thanks for answering, I havn t seen a neurologist have been seeing gp for these symptoms for a few years and she ordered mri and lumbar puncture but will have to wait a while for that, my case is complex as she was putting the symptoms down to side affects of medication ( antidepressants snd anxiety meds from post natal depression), however symptoms getting worse contstantly with no let up at all, my husband thinks now with the clear mri that I should be fine, wish that was the case! Again thanks for letting me waffle on as I have no one to turn to x
Hi Irish
I’m afraid I can’t answer your questions but just wanted to add my support. I know that it’s hard getting people to understand how you feel and that must be even harder if you’ve had tests that don’t show anything up (I’ve had tests but haven’t had my results yet). I think you do need to push for more answers as something isn’t right - whatever that ‘something’ is. I have had umpteen blood tests and I think most GPs are happy to order lots of those because they aren’t too expensive (compared to scans and the like) and they can give a lot of information about hormone and vitamin problems, infections, inflamation etc etc. Also, I went to see an osteopath to see if I could get a more ‘holistic answer’. It was actually her that wrote to my GP saying I needed to see a neurologist but I think that osteopaths can be good for looking at muscular problems from a different perspective, so you might want to try that (although they can be expensive). I have also decided to take up Pilates and am about to join a local class. It won’t get me any more answers but I’m preparing myself for not having an answer and trying to do everything I can to start functioning more effectively than I am at the moment. I think it can help to feel like you’re in control of something - even little things like taking some gentle exercise or making a good case for asking for more medical tests can help.
Good luck and let us know how things go for you.
Lilacgirl x
Have you had your bloods checked for B12 levels etc ?
Hi again…thats just not the case, as your hubby thinks.......a clear MRI means zilch if youve still got problems.
I had 4 clear mris, but still cant walk!
Not everythigis so clear cut i`m afraid.
luv Polx
Hey there, thanks again for the replies. Hope yous are as well as can be. I have had all my bloods checked and there fine. Would you mind if I asked a couple of questions. My symptoms seem to be coming on quite quick and am having alot of problems with my upper body not so much my legs is this normal with ms? Also one of my first symptoms was and still is twitching all over abs everywhere is this a normal symptom? I really appreciate the chance to ask these questions as ive a path bet to the doctors office but I still come out none the wiser!!
I also have a lot of muscle fasciculations (twitches)
My Neuro has always told me that they shouldnt occur in MS patients… but some people do get them, they are unsure as to why since they belong to different systems.
constant muscle fasciculations is a reason enough to see a Neuro.