I hate being in this limbo land, the constant self doubt and battling the unknown. Today I had an appointment with my GP to get my results for my full spine MRI (without contrast), the result? Normal. Is it bad I felt disappointed by this? Frustrated? I just wanted a diagnosis, a confirmation that the symptoms I’m feeling are real, that I’m not lying or imagining them. At first I was concerned about my symptoms but now that concern has turned to worry as they are only getting worse, my left arm felt limb and weak for days to the point I’d avoid using it. In the 20 months of experiencing on and off symptoms it is the first time that my symptoms have actually stopped me performing activities or slowed me down.
Thankfully, my GP is very empathetic and is taking me seriously. Both herself and another previous GP have confirmed after performing reflex and strength tests that my left side is weaker than my right. She’s asked that I go to the opticians to have my eyes tested again as it’s been over a year since my last test (I have normal eye site but occasional blurred vision, assumed to do with migraines) to get a clearer picture of behind my eyes. She’s also referring me to a Neurologist and will attempt to make a urgent referral but may not be accepted. She hasn’t suggested MS and I haven’t raised my concerns because I don’t want to throw around assumptions.
I’m wondering if all you lovely people can help! I have a few questions -
She said the Neurologist may request a brain MRI, if it is MS can lesions be on your brain but not on your spine? How long are Neurologist appointments, is it just 10 minutes like a GP appointment or longer? Will the Neurologist perform tests like a Nerve Conduction test there and then?
Best wishes all,