Good evening all.
Can anyone signpost me to support networks that are either online or regional meet ups for people who care for people with MS?
I am really struggling with my partners diagnosis and would really benefit from lived experiences of how to navigate the journey.
Any help would be greatly appreciated.
Perhaps try your local branch and see if there is anything suitable in your area.
I hope you find the support you need.
Local Support for People With MS | Multiple Sclerosis Society UK
MS UK seem to have a lot on this including a ‘Pod’ for carers . Not quite sure what this is but I think it includes an online session every month
This is a bit of a total guess from me but would I be right in thinking that this is a recent diagnosis and that your mind is rushing all over the place and fearing the worst?
No idea if you will be interested/ reassured by the following but MS is no longer the quick trip to total disability, wheelchair etc that it used to be! I was diagnosed around 19 years ago with relapsing Remitting MS and I’m still walking , able to do my share of the housework etc etc. I suppose you could say that my wife is my carer but in fact I don’t need any ‘care’. I sometimes get ‘fatigued’ and can’t walk continuously for more than 10-12 minutes or so but I’m OK.
Please do Feel free to message me with any worries, questions etc