I’m not really sure if I’m supposed to be posting on here, or if this is more for people with MS to talk to eachother. However, I am struggling at the moment and would be grateful of any advice or tips that family and friends of someone with MS could share with me.
My brother got diagnosed with MS a year ago, and as you can imagine we were all absolutely devastated. However, we have also tried to be as positive as we can, in supporting him whenever and with whatever he needs. 12 months after his diagnosis, and he has just been to a check up, and luckily he hasn’t had a relapse yet, which is great news and i am over the moon for him.
But I do really feel like he is struggling to come to terms with it, and in turn so am I. He has accustomed himself to knowing how different his future could be, and I feel like that is partly holding him back, which I really don’t want it to. I really want to support him, and do everything I possibly can for him, so that he can still achieve all of his dreams. But I really struggle with how to talk to him about his MS. When he mentions that he’s feeling numb, or that his muscles are aching, I don’t know what to say. I take the approach of telling him to keep active, and to not let the thought of what might happen slow him down, but i’m not sure if i’m doing the right thing by saying that.
If anyone has any advice on how to react, what to say, how to be supportive etc, I’d be grateful to hear some ideas. Thank you.