This is happening to me, 2 weeks ago it was so bad that when I stood up my legs would stiffen and shake and it would go up my whole body. Im already on Baclofen twice a day and I dont find that there working. I got told it was a UTI thats caused the unbearable pain in my legs and its also caused the leg stiffness. Since ive been on anti-biotics (Cefalexin) ive found it has eased up compared to how it was 2 weeks ago but they still get stiff. The ‘Dr’ today said it was because of damage to the nerves down my sipne which is causing the stiffness and leg shakes. Im seeing my GP on monday and i’ll believe him over the other ‘Dr’.
Me too: I do gentle stretching exercises/ warming up exercises first thing in morning really helps!
Hello
I was put on baclofen because of the stiffness but started falling over and was not able to get up as my arms were so weak. Unfortunately this happened the week before xmas, in the road, and cars just drove round me!!! christmas cheer - i think not.
So I have stopped taking it and found stretching exercises much better !!
Good Luck
Lisa
Leg stiffness seems to be part of the package but i do find gentle streching excercises help.
Also i take Baclofen it does help, ask your MS nurse or GP and see if you can try it, with a bit of luck will help.
Take care
Mark
& Keep smiling
-I too have stiff legs, feel like a robot like someone else has said. I find if I keep moving as much as possible then theyre not as bad. Baclofen is good if you can tolerate it.
Stiffness seems to get worse if we dont exercise enough. Do try asking if you can see neuro physio who can give you exercises to do to keep everything as supple as possible.
bren
x
I do stretching exercises and they seem to help. I got these from physio after asking my GP.
I too have stiff legs and one pretty stiff knee, walking up steps can sometimes feel like i’ve got my old lead boots on from my last relapse. Since i recovered from my last relapse just over a year ago, my legs got pretty good, but i am noticing them getting slowly worse, so i have a question. Do the people here with the stiff legs that differ from time to time depending on fatigue etc have RRMS or SPMS. I’m a little bothered that i am getting slightly worse legs but have not had a relapse. Isn’t that how SPMS developes or is it normal for RRMS. Maybe should of done my own post and prob will do if nobody notices this. I do cycle to work 2 weeks out of 3 so do get exercise. Thanks
Hi - very late reply. I searched for baclofen and this thread came up. I suffered from stiff legs every night. Started taking magnesium which solved the problem. Ran out once so couldn’t take it and my stiff legs returned. Solved when restarted. H &B penny sale is my source buy one tub and get another for 1p Hugs Min xx
I have one stiff leg, have had it on and off for few years. I take Baclofen and Amitryip at bedtime and neither seem to help. My arm and hand on the same side as the stiffness are suffering from low tone! This damn condition does not seem to make it’s mind up!
Thanks for magnesium tip, hasn’t been mentioned for a while.
Someone mentioned stiff legs recently.
My neuro suggested having an inch high wooden block in the kitchen to put your feet on and drop your heels down when you’re chopping veg, washing up etc. I find it very useful and the family learnt not to trip over it.
Jen x
I have been using magnesium tablets (on Whammel’s recommendation) and finding it is easing musle spasms and tension at night, so much so I can move my legs in bed and turn over by myself again instead of requiring assistance. Magnesium oil is also helpful - my husband massages it in just before bedtime and I have found I cannot manage without either product. I also take one dose of Baclofen at night.
The effects of all the above plus gentle stretching really help with my stiff leg muscles and spasms and hopefully will enable me to walk a little longer.
I also have Botox injections in my hamstrings every 12 weeks, to ease the spasticity. It may be worth keeping a food diary, to see if your symptoms are aggrivated by certain foods.
Best wishes, Jo,
My legs have been very stiff this week. In fact on Tuesday I had to phone in sick (first time in ages even despite a recent relapse) as I couldn’t get out of bed until lunchtime. Couldn’t even get legs over the bath to have a shower :-(.
I do yoga stretches which hurt at first but it does get them moving and I take co-codamol to take the edge off it. I take amitriptyline at night. I’m just pushing on and using my stick to keep moving as if I sit still for long periods it makes it worse.
I’m not due to see the neuro until August but if they are still playing up I will have to mention it as it is such a bind not being able to walk very far at all. It is so tiring
Tracey x
Apart from a very stiff right leg …impossible to bend at knee…I get very sore back of heals at night. Its a stinging pain. Any comments much appreciated
Dodgy/stiff/spastic legs are, it seems unfortunately, part of the deal. I haven’t tried medication as yet & I’ll stear clear of this as long as possible (being a psychiatric nurse I’m always sceptical).
I find regular use of a battery cycle/e-bike is brilliant at keeping most of the horrors at bay, helping the legs function ‘normally’ & it gives you a good chance to appreciate the scenery & keeps you fittish. One thing my MS doesn’t effect much is my balance luckily. Once I’m moving I’m away at a hack. A Kalkhoff motor driven jobby is simply superb. Cycling is also a ‘regular’ activity at which you can join with others who will invariably treat you like everyone else & envy your bike into the bargain, a situation with which my stick & blue badge don’t help with. There is no reason why MS should make you stand out as different. Charity bike rides are now much easier too!
Be warned: when you stop cycling your legs don’t fully appreciate that you’ve stopped & therefore that they will be required to take your weight. Many a moment forgetting this & lying on my backside getting over it. You can’t help but laugh at how daft this may seem to others. I’m sure I’ll try meds & a wooden roller in due course in addition to the bike…but for now
Best wishes,
Jem
Battery bikes/e-bikes rule the roost with stiffness, for me. Cycling is also kind of ‘normal’ & charity rides are a doddle! My stick & blue badge don’t have quite the same impact for me. Useful in their own way of course. MS seems unlikely to effect the balance needed to cycle but don’t forget that when you stop moving your legs might not necessarily be aware that they have the job of supporting you. Many a time I’ve landed on my backside much to the amusement of others, & to myself eventually.
Best wishes
Jem
Hello My right leg is very stiff and difficult to bend at the knee, I walk with a walking aid I have been prescribed baclofen but reluctant to take due to side effects, des anyone have positive feed back on baclofen
Thanks Tricia
My husband cannot bend his left knee, does anyone know the best way to help him stand, also getting into the car very tricky.
Is the stiffness around your joint or all over?