I am really hoping someone may be able to share their experiences with me, I feel very alone! I have the most awful extensor leg spasms, there is really not alot about these spasms on the web and I fear I have them so severe.
I take 40mg of Bacofen every night, I have just upped this by 10mg, any more and I feel drousy in the day! a specialist MS physio is going to try me on Gabapentin, anyone take this???
Any time I get up from sitting or lying my legs just have a mind of their own and uncontrollably stretch out rising me to my tiptoes for about 5 seconds then they start to relax and I come down again, sometimes these spasms lead to a cramp in my calves, it really is taking over my life and depressing me terribly! I try to sip water all day and my Husband stretches my calves and feet with excercises twice a day. I also have footdrop in both feet and wear two Safos
Also these spasms extend into my back sometimes and it is really painfull, do any of you have spasms like this?, Id like to hear if anyone has anything that they can pass on that may possibly help, I can honestly say this is my worst symptom of this wretched illness have a lovely day, hope to hear from you X