Hi, I hope someone can help as I am confused as to what is happening to me.
It started over 4 weeks ago with an agonising sore head and eyes, however the tip of my nose and lip area were numb. Also if I touched my face or scalp it seemed to set of a feeling of something crawling on my face or hair.
Initially I was referred to neuro and had a brain MRI, this showed several ‘abnormal patches of inflammation’. This neuro stated that this is likely what was causing my head pain. A 2nd spinal MRI was ordered and I was also referred to a new neuro who specialises in inflamed conditions.( The original neuro also advised that I may need to have LP). My first appointment with the 2nd neuro confirmed my spine was clear. He suggested that I may have 2 separate issues as the inflammation wouldnt cause head pain.
The first of the issues was the (still there) 4 week headache, which he said could be Migrainous and advised to come off any pain relief and see if this is causing rebound pain. I am currently doing this and the headache and eye pain is milder but still there. I have had what I thought was a migraine over 10 years ago when my right arm went numb and my peripheral vision went for few hours but no headache.
The other issue is the brain inflammation, which he said, as my spine is clear “it is unlikely you will get any physical symptoms, therefore there is no point in doing further tests”. Does this sound right? he even said if i’d come through NHS I wouldnt have had the scan and therefore would be oblivious to it!! Does this mean that I could develop MS later on in life but have to wait for physical symptoms?? Surely the inflammation is a symptom of something else and I should try to find out the cause?
Any advice/opinions would be welcome.